Tag Archives: Marathon

Barcelona Team Complete Half Marathon

IMG_8538Five members of Fetal i+D team at the University of Barcelona took on the challenge of running the Barcelona Half Marathon on Sunday February 12th.

The runners are all medical doctors and researchers from the team and work on a daily basis to diagnose and treat fetuses with neurodevelopmental risks. They all gladly offered to run as a way of getting more involved with their community and to support the families and children they usually see in their clinics, in a different way.

Rui V. Simões, PhD, one of the runners and a researcher in the group told us: “This was actually my first half marathon and the motivation could have not been better. I felt very proud to have run for Cerebra. We made it to the finish line and hope that the fundraising does too. Our children deserve it!”

Our thanks go to the whole team for joining us in our mission to help families with children with brain conditions discover a better life together.

You can keep up to date with all of our our website. If you would like to take part in an event that isn’t listed  you can also contact Cecilia Bufton, Events Coordinator on ceciliab@cerebra.org.uk or 01267 242586.

Team Cerebra Gains Another Runner for London Marathon

Adam during his 26 mile run from Nuneaton to Coventry in preparation for London

Adam during his 26 mile run from Nuneaton to Coventry in preparation for London

This year’s London Marathon is taking place on 24th April and we’re proud to welcome Adam Louth to team Cerebra!

Adam is 31 years old and works for Deloitte as a surveyor.

Adam told us: “I decided to run the London Marathon for the first time with my two brothers. Unfortunately they were both unable to get a place but I decided to commit and run it alone this year!

Two of my work colleagues have charities close to their heart and Cerebra has helped my colleague Mark whose son has cerebral palsy. I wanted to raise money for a charity where I could witness the positive effect the donations would make.

My goal is to complete the London Marathon, but If I can I want to hit the 4 hour barrier mark.”

If you would like to sponsor Adam, you can do so through his Virgin Money Giving Page.

Group of Runners get Ready for the Cardiff World Half Marathon

Neil, Emyr and Aimee with Sir E. Bear

A group of runners from Carmarthen are getting ready to take part in the prestigious Cardiff World Half Marathon on Saturday 26th March.

The event is special because it is the first time the IAAF World Half Marathon Championships have been held in the UK since 2009 – when Birmingham hosted the event. The fact that the race is once again coming to the UK is huge because it means that some of the world’s top athletes will be on our doorstep. It also means that budding runners can test their skills against the likes of Mo Farrah.

Cerebra are very proud to have a group of seven runners taking part in the event in order to raise money for the charity.

Neil Lightfoot, Jorge Collings, Ben Horne, Emyr Evans, Jacob Booth, Aimee Booth and Nick Bates will all be dusting off their running shoes and hoping to make it around the 13 mile course – all while raising money for Cerebra.

Ben said: “When I heard that Cerebra needed representation for the Cardiff half Marathon in March, I felt some personal responsibility to answer the call. I’m not a dedicated runner, but I’m ready, willing and able, and I’m already preparing for this race. I’m going to run simply to represent Cerebra and support their work.”

If you would like to sponsor one of our runners, you can do so by clicking on one of their names above or you can donate on our website or by texting CERE12 and the amount you want to donate to 70070.

Mum to Run London Marathon for Cerebra



Due to unforeseen circumstances, Juliette has been forced to pull out of this year’s London Marathon. Thank you for your support.

Mum of three, Juliette Edwards from Birmingham, has a very personal reason for running in this year’s London Marathon for Cerebra.

Juliette, a doctor, has three boys – Benjamin, Daniel and Joseph who are all on the Autistic Spectrum and she has reached out for support from Cerebra on several occasions.

Juliette told us her story in her own words, including why she wanted to give something back to Cerebra.

“My three boys all have learning difficulties and Cerebra has helped me a great deal over the years. At times I don’t think I would have managed without Cerebra’s support.

Our family journey started when Daniel was born prematurely at 35 weeks. He rapidly lost weight becoming just 4 1/2lbs. I hadn’t for one moment contemplated that anything untoward would happen in my pregnancy. The day before he was born I had a little bleeding but still went to work, as I had a check up appointment later that day with the midwife, so thought I’d just discuss it with her then. My consultant and I had a paediatric theatre list that morning, and our conversation whilst at work included her asking me how it was all going with the pregnancy. I casually remarked that I was sure there was nothing to be concerned about, but that I’d had some bleeding. She felt differently and sent me straight off to the maternity unit. Needless to say I didn’t go back to work, and was declared to be in labour that evening with Dan being born the next day. I had a humongous cannula in my hand, just in case I were to suddenly crash. I found the whole experience surreal, with all the monitors attached and staff busying about, as I’d never had anything ‘wrong’ with me before.

Dan Jo and Benji

Dan Jo and Benji

It carried on from there. Daniel was rushed down to the special care baby unit on day four as he couldn’t feed until the twenty sixth attempt. As a result he was tube fed for fourteen days. We went home at day eighteen with a tiny fragile baby. We were back in the hospital when Dan was six weeks of age for surgery as he suddenly developed bilateral inguinal hernia. He was four hours in recovery as his temperature had dropped to 32 degrees on the operating table! He was delayed with all his milestones – smiling, rolling, laughing, sitting but I hoped for the best and thought he’ll catch up, it’s just because he was early.

The health visitor was so concerned that at eight months we were referred, and so began a whole series of assessments and investigations, and three weekly visits to the child development centre for a whole term for OT and SALT review, culminating in a big multidisciplinary meeting, at which dyspraxia was diagnosed. It was said he likely had ADD and ASD too, but he was too young for these to be formally diagnosed as yet. I was told he would definitely need special schooling, and that the consultant was going to get the ball rolling for this, even though he was only 2, as such things took time to arrange. We carried on through toddlerhood with OT and physio interventions, as well as all the usual activities, I had gone back to ophthalmology when Dan was one, and started maternity leave again when Dan was 2 and a half, as Jo was born. How wonderful when he could just feed minutes after being born, and he appeared to be developing at a normal rate. How surprised I was when the health visitor expressed concerns when Jo was two and said he needed to be referred for consideration of ASD. Dan started school, and after a huge amount of toing and froing with the LEA, no statement was forthcoming for Dan, and he started at a mainstream school with 90 peers in his year, 30 in each class. Educationally, everything was a phenomenal struggle for him.

I was pregnant with Benji, and he threatened to be born at 32 weeks but he managed to hold on in there until 37 weeks. Benji’s development was delayed also from the outset, and he also had a fistula requiring surgery when just a few months old and also abdominal surgery for duodenal malrotation before the age of two. Alongside all the therapy input, and SEN meetings at school I was often going to appointments every day of the week.

I could write a book about all the things that happened, interventions I tried, support I gave. Then the tribunal battle to get Dan his statement and a place in special school, that would be a whole volume in itself. Benji’s school weren’t coping with him, nor he progressing in class, so the LEA put him forward for a statement at the same time, and with the LEA’s support in getting his school place, the process was so much easier, but still required a phenomenal amount of input none the less.”

Cerebra has been able to help Juliette’s family with advice and support, help through our Wills and Trusts scheme and a much needed family break at our holiday home.

This year the London Marathon takes place on 24th April. It’s one of the biggest running events in the calendar and Cerebra was very lucky to get a place in this year’s race. Lots of people applied to us for the place and competition was tough – we were delighted to offer it to Juliette and wish her the best of luck.

If you’d like to support Juliette you can visit her JustGiving page here.

Cerebra has places in all sorts of running events across the country – from half and full marathons to mud runs and colour runs. So if you fancy challenging yourself and supporting Cerebra at the same time you can find out more here.



Toddle, Waddle, Run half marathon success

Sarah and Annaleigh at the Cardiff half marathon helping support Lucy to toddling victory!

Sarah and Annaleigh help support Lucy to the finish line!

We recently launched our Toddle, Waddle, Run campaign as part of the Cardiff Half Marathon, which this year included a toddler dash and mascot race as well as the main event.

On the 3rd October our youngest ever fundraiser, 21 month old Lucy toddled with the best of them and ended up in a very respectable third place. She was helped along by Annaleigh and Sarah – who was herself preparing to take part in the half marathon the following day.

Saturday was also the day of the mascot race where Cerebra’s infamous mascot Sir E. Bear was hoping to waddle to victory. He had been training hard and had his sights set on the win but sadly it was not meant to be and once again, he came last.

Sunday the 4th October was the day of the half marathon itself and Sarah, who is Cerebra’s Trust Fundraiser, did us proud – completing the race in an impressive 02:15:05.

Everyone at Cerebra would like to say a huge thank you to the team for all of their efforts – even Sir E. Bear!

Don’t forget, you can still show your support by sponsoring the team. Just text CERE12 and the amount you would like to donate to 70070. Thank you!

Like to run? Why not run for Cerebra

Cecilia Bufton

Cecilia Bufton

Hello. My name is Cecilia Bufton and I have just started in the brand new role of Events Co-ordinator at Cerebra.

Cerebra does some fantastic work supporting children and families who are living with neurological conditions, but we rely on the generosity and commitment of our supporters to fund everything that we do. Each year lots of people up and down the country put on their running shoes and challenge themselves to raise money for the charity – and every penny they raise is vital.

I’m looking for people to join in with everything from fun runs to half and full marathons and the gruelling, but great fun, challenges such as Tough Mudder to raise awareness and funds for Cerebra. I will be here to support you, give you guidance in fundraising, provide all the resources you need and even cheer you over the finish line!

To tell you a bit about me, I actually worked at Cerebra about seven years ago as a telephone fundraiser. I left to go to university, but never forgot what I experienced as a friendly charity doing some great work to help families in need. I can simply say that this role is perfect for me and finding a job that has the potential to give you a great purpose and happiness is rare to come by.

So whether you’re a keen runner already or if you have never run before but would like to start, why not have fun, get fit and support Cerebra at the same time. Please get in touch or pass this information on to friends or family and let’s make a difference and keep fit in 2016.

You can contact me on:
Email: CeciliaB@cerebra.org.uk
Tel: 01267 242 586
Mobile: 07580976497

I look forward to hearing from you.

Meet Our London Marathon 2015 Team!

London marathonWe catch up with our team for the London marathon 2015!

The team at Cerebra are looking forward to the London marathon as this year we have four very brave people running it for us!

Some of you may know our first recruit – local radio DJ James Southon who has shows on Radio Carmarthenshire and Pembrokeshire. When Cerebra approached our local radio station Radio Carmarthenshire to see if any of the DJs would like to run the marathon for us, James stepped up and swiftly commenced with his training!

James told us: “I had sworn NEVER to enter another running race again.

In March of last year I ran the Llanelli half marathon and it nearly killed me! However, when I looked into the brilliant work Cerebra do with children suffering with neurological problems both locally and nationally I felt obliged to step up. They really do make such a massive difference.”

Race day, 26th April is James’ birthday so he is really making sure it will be one to remember!

Our next team member has a very personal reason for supporting us. Michael Harris is running for a very brave little boy who was born with Corpus Callosum and Cerebellar Vermis. Michael has watched the boy’s mother, who is a friend of his struggle to get information and answers about her son’s condition. Michael is raising money for us because we support children and their family’s needs and also help provide information to empower parents.

Andy Day, our next team member will be 52 years old on race day, but despite this, he recently climbed Mont Blanc before setting his sights on the marathon!

Andy is also running for personal reasons as his cousin’s daughter was born with Band Heterotopia.

Andy has watched as cousin Sharon has faced great hardships whilst raising daughter Sophie but has also seen the difference Cerebra has made to their lives. Sophie is now 20 and although life is still hard; Sharon has been able to find some support through Cerebra.

The final addition to team Cerebra is Steff Gadd who is raising money to thank us for funding a trike for her cousin’s son, six year old Harry.

We’re looking forward to cheering each of them on and remember, you can support three members of the team through their online giving pages: James, Michael and Andy.

We wish all of our marathon runners the very best of luck for 26th April.

Dawn’s Rock and Roll Marathon

Dawn taking part in the Rock and Roll MarathonA huge well done to Dawn and Martyn for running the Liverpool Rock and Roll marathon!

On the 25th of May Dawn and Martyn completed the Liverpool Rock and Roll Marathon, raising over £600 for Cerebra!

Although neither of them had run a marathon before, Dawn decided she wanted to raise money for a charity like Cerebra thanks to her niece Abbie, who has cerebral palsy.

“It’s been a hard long 18 week training slog,” she said, “taking me to places mentally and physically I have never been before.”

It was all worth it in the end, however, with Dawn finishing the gruelling run in just over four hours. The run took them past some of Liverpool’s most iconic landmarks with live bands and music helping the runners on their way.

Everyone at Cerebra says a huge thank you to Dawn and Martyn for taking part in the marathon. Every penny raised is vital to making a positive difference to lives of children like Abbie.