Tag Archives: Innovation centre

Holly’s Rocking Dinosaur!

Holly and her rocking dinosaur

Holly and her rocking dinosaur

Liz and Jim are parents to 15 month old Holly and they recently contacted the Cerebra Innovation Centre (CIC) with a challenge to complete in time for their daughter’s first birthday. They told us their story:

“We contacted the Cerebra Innovation Centre (CIC) after realising the first birthday present we had bought for our daughter, when she was just a month old, was completely inappropriate. Holly loves rocking and we really wanted to get her a rocking animal for her first birthday and we found a dinosaur. The problem was that it was unlikely Holly would ever be able to use it as it had no harness or support.

Holly has a rare chromosome disorder. She has duplications on 2q24.2 and 2q24.3. This manifests as Holly having hypotonia, global developmental delay, visual impairment, Sandifer Syndrome and food allergies. She is at a high risk of developing autism and epilepsy but we are lucky that she seems to be ok at the moment. As Holly has hypotonia her core is very weak and so she struggles to sit unsupported.

Holly is a really happy, wonderful little person and we wanted her to be able to enjoy her rocking dinosaur. We approached Ross and the team at the CIC to see if it would be possible to convert her toy so she can enjoy it safely, as it is one of the few toys she has that is just for her to have fun and enjoy being a little girl. They rose to the challenge beautifully and added pieces to it so that we could attach the Firefly GoTo seat, which would keep her safe.

Holly loves her dinosaur, she can make it rock by herself and she is independent.  We are so grateful to Cerebra for making this possible for Holly. It even arrived back in time for her first birthday!”

If you have an idea for a piece of equipment that you would like the CIC team to build, you can get in touch with them at cic@cerebra.org.uk or 01792 483688.

 

Can’t find a riding helmet to fit your child?

We introduce the newest member of our Innovation Centre and would love to hear from you if your child would like to try horsey activities but you can’t find a helmet to fit.

New team member

Maria Kemys

Maria Kemeys

“Hi all, my name is Maria Kemeys. I am the newest member of the CIC team as their new Business Development Officer. I am a recent graduate with a Master’s in Business Administration and have a massive passion for working with a charity who contributes to changes that impact and better a child’s life. I am delighted to have been offered the position to work alongside the team in the Cerebra Innovation Centre where innovative and life changing work is being carried out every day to help children in unique situations. I am looking forward to working as part of the CIC to develop new and existing projects for families and children, helping to them to enjoy life together.

Can’t find a riding helmet to fit your child?

Tommy Lee wearing his helmet

Tommy Lee wearing his helmet

You may remember that in 2016 we were approached by a school on behalf of young man called Tommy Lee. Tommy Lee was unable to participate in their weekly horse riding sessions as the riding centre did not have a helmet that would fit Tommy Lee’s unique head shape.

Our Innovation Team worked hard to design and make a bespoke riding helmet that meant Tommy Lee could take part in riding lessons with his friends. The helmet was not only comfortable but safe and certified by the British Standard Institute (BSI).

Thanks to a donation from Mr and Mrs Coventry at Claire’s Project our team are now able to develop more of these equestrian helmets. So if your child loves horses and would love to try equestrian hobbies but can’t participate because of the standard helmet size,  then please get in touch to find out more.

You can contact the team on cic@cerebra.org.uk or call 01792 483688

Innovation Centre Create High tech horse riding helmet for young boy with unique head shape.

Tommy-Lee in action

Tommy-Lee in action

The Cerebra Innovation Centre (CIC), along with the help of BSI (British Standards Institution) have taken the challenge to help a young boy with autism and a unique head shape to fulfil one of his dreams.

16 year-old Tommy-Lee from Brighton wanted to go horse riding with his friends but his unique head shape prevented him from wearing a riding helmet. Without a riding helmet he was not allowed to participate for safety reasons.

CIC’s mission is to design and develop products that will allow children to be included in activities and daily living. They focus on careful attention to the aesthetics of the product to ensure that the child not only fits in, but in some cases becomes the object of envy of the playground.

In conjunction with the MSc Industrial Design course at UWTSD, Swansea, the CIC team used high tech equipment to develop a bespoke riding helmet for Tommy Lee.  Dr Ross Head, Product Design Manager at CIC said:

“We knew that the basic principle of a helmet is quite simple but the journey to get to a safe and useable helmet was quite complex. The basic method has been to use a 3D digital scanner to scan in Tommy Lee’s head shape, the software helps to stitch the head form together so a perfectly accurate model is achieved. Then we used this data in our computer aided design software to draw the head shape. The helmet was styled around this shape, and then the cavity was removed leaving the exact shape for Tommy Lee’s head. This model was sent to a manufacturer to machine the exact shapes from the correct density of expanded polystyrene.

The team who helped Tommy-Lee's horse riding dream come true

The team who helped Tommy-Lee’s horse riding dream come true

“Upon hearing of the project and the likely cost which would have prohibited us from continuing, a very kind gentleman, Mr Gordon Coventry from a charity called Claire’s Project, offered to help fund the cost of the helmet with a generous donation of £2200.”

Gordon Coventry explained why he was moved to donate to this project: “Watching Sophie Christiansen take part in the 2012 Paralympics dressage competition was inspiring. Her face when she claimed gold was pure happiness. There was a similar look on the face of the young boy on the surfboard recently designed by CIC. I was happy to support Cerebra to enable other children to take part in activities and sport they haven’t previously been able to access”.

CIC approached the British Standards Institution (BSI) for a quote for testing the helmet to ensure it meets the same standard that a regular helmet would be subjected to. BSI kindly agreed to fund the entire cost of the testing by way of support to get Tommy Lee horse riding and tested the helmet against the BSI Kitemark™ scheme.

Maureen Sumner Smith, Managing Director UK & Ireland, BSI said: “We’re delighted to have been able to support this really worthwhile cause through our testing services. It’s been very rewarding  to work alongside CIC to help develop this bespoke riding helmet for Tommy and we’re sure that he will now get to enjoy many hours of horse riding from this.”

CIC created six helmets in total. Five of them were sent to the BSI headquarters for testing and the remaining one was finished to a beautiful standard so that, with the exception of its size, it would be indistinguishable from another riding helmet.

The team from CIC delivered the helmet to Tommy-Lee on 25th February and he couldn’t wait to put it into action. Sue Boyce of the Three Greys Riding School, Brighton, where Tommy Lee will be going horse riding said “I am very pleased that Tommy Lee will finally be able to go horse riding with his class mates, which is something he has been looking forward to for almost a year. I am sure he will love it. It is so lovely to hear that so many people have made so much effort to make this happen. We are really looking forward to it.”

Tim Schvetz, Tommy Lee’s teacher at The Cedar Centre in Brighton said, “I am absolutely thrilled that Tommy Lee is finally getting the opportunity to ride as a result of this project. He has been so keen to get on a horse and this is his chance. This will vitalise his independence. We are all so grateful to Ross and the team for their persistent hard work to get the helmet finished”.

You can watch a report on this story which was featured on ITV Wales.

Thank you to Terry Applin for allowing us to use the lovely photos below:

Surfing Success for Cerebra

Kai getting ready to surf

Kai getting ready to surf

Our Innovation Centre have successfully tested two pioneering new surfing products for disabled children at Llangennith beach in west Wales. Over the summer our designers have developed two products: a tandem surf board with a supportive “bucket” seat that can be used by disabled children whilst being controlled by a trained surf instructor and a Surf Access Vehicle. Both products are for use by children with neurological conditions and have been developed with Surfability UK (surfing for disabled children) and Tonic Surf Therapy (based on the evidence of the effectiveness of surf/ocean therapy programmes in the UK and USA). The team tested the new products at Llangennith beach and they were helped by thirteen-year old surf enthusiast Kai Lewis, from Port Talbot, who has cerebral palsy following a stroke at the age of one.

Kai taking to the waves

Kai riding the waves

Proud mum Leanne Lewis watched on, thrilled as her extreme-sports-loving son enjoyed the new technology. She said “with this now, he is like the king of the sea, he can sit back, relax, and ride the wave. The first wave he caught was the biggest he has ever caught, and my heart was in my mouth. It was amazing and it opens up so many options, not just for Kai, but for other children with disabilities. Hopefully it’s going to get more children out of their wheelchairs, and for a parent of a child in a wheelchair the more you can get them out, the better.” Speaking after the testing Dr Ross Head, CIC Product Design Manager, said: “The day went so well. We could not have hoped for better surf conditions, weather, and great team of people with the desire to make this work. It was an amazing feeling to see Kai surf past shouting with joy.”

The Surf Access Vehicle

The Surf Access Vehicle

He continued: “Recent news coverage has detailed professional level surfing and brought it to an international audience. The sport continues to grow at a very fast pace. Many disabled surf charities are in existence around the world but they are all trying to use regular surfing and other beach access equipment to enable disabled children and adults to surf. “Since its inception CIC has made a tremendous difference to the lives of many children with neurological conditions across the UK. The unique strategic vision for CIC means that we are able to respond to individual requests for help and can make small numbers of bespoke products that focus heavily on individual requirements and inclusion into society. Some of the products in the portfolio are now being commercialised in partnership with third-party manufacturers under licensing agreements.”

Kai using the Surf Access Vehicle

Kai using the Surf Access Vehicle

Read more here about how CIC may be able to help your family. We are grateful to the University of Wales Trinity St David, Surfability UK, Roger Cooper Surfboards, Surf Tonic Therapy and Walking on Water Surf School for working with us on this project.

All photographs used with kind permission of Mark Griffiths.

Ross and the team at the Cerebra Innovation Centre are still in the early stages of trying to make these products available to surf clubs across the country and you can help make that a reality! You can donate below, by calling our fundraising department on 01267 244221 or to donate by text, just text SURF15 and the amount you would like to give to 70070. Thank you for any support you are able to give.

I would NOT like to gift aid my donation

I would like to gift aid my donation

Innovation Centre work on new surf products

The surf access vehicle

The surf access vehicle

Surf access vehicle: SAV

One of the new products being pioneered by CIC this summer has been the new Surf Access Vehicle (SAV).

Being developed in conjunction with Surf Tonic, a West Wales based surf school which specialises in surfing for people with various conditions, the SAV is aimed at transporting people from the car park to the water’s edge, and then into the water to aid transferral onto a surfboard. The cool design was created in partnership with a student who did a short internship with CIC called Ben Hammonds. The concept is designed such that a person of any size, any ability and condition, can sit in the seat comfortably and with dignity, be transported across rough and sandy terrain and then plunge into the waves. At this point, the seat can lay flat, allowing the surfer to slide off the SAV and be transferred onto the board.

Surfing is well documented as a great treatment for many conditions. Being outdoors, the fresh air, the sound and the motion of the water all conspire to make us feel great, so the more people who get to experience this fun sport the better. And with the length of coastline we have in the UK we are spoilt for choice!

The SAV is nearly complete after a long summer of development, but we hope that it will be in service during September and due to its superior materials and construction should see many years of use. We look forward to updating you with stories of its success and some photos of the real thing in action!

Tandem seated surfboard

Another surfing product that CIC have been asked to assist with has been a tandem surfboard which has a seat on it. This enormous surfboard can be ridden by two people: an instructor, who will paddle, surf and control the board, and a surfer who will sit in the seat and experience all the fun and motion of the waves.

CIC surfers, Ross and Dan designed and developed the board in collaboration with Ben Clifford from Surfability in Swansea, and Roger Cooper surfboards in Cwmafan, near Port Talbot. The board measures 12 ft long, and 36 inches wide and has an adjustable bucket seat from a racing car. The seat was very kindly made and donated by Jamie McDonald from Techneat Tanks.

The board has been made for Kai,  a local Swansea surfer with Cerebral Palsy, but it is hoped that as many as 50 children will benefit from the board each year and with a life expectancy of 5 years, there will be many hours of great surfing to be done!

Surfboard success for the Innovation Centre!

The surfboard designed by the Innovation Centre

The surfboard designed by the Innovation Centre

The Cerebra Innovation Centre (CIC) recently took on their latest challenge and converted a surfboard so that children with physical disabilities can enjoy the experience of surfing safely.

One such board was sent to the family of young J and their feedback has shown that the surfboard has been a huge success!

The family received the board just before their summer holiday and Mum provided us with some feedback before testing:

“We are all so excited! The board is absolutely amazing, we have all been jumping around the house as we are so thrilled! Fingers crossed this makes him independent and boosts confidence.”

J’s reaction to his new surfboard was definitely a positive one and he told the Innovation that they had sent him “the most coolest board (better than my parents’!).”

According to J’s mum, the surfboard was indeed a success and really made the family’s holiday.

“The surfboard worked wonderfully. Having it with us reallymade our hols.  J independently body boarded at Saunton sands, Croyde, Putsborough and Woolacombe beach! All three of us even caught the same waves!”

The guys at the Cerebra Innovation Centre are currently looking for new challenges. Do you have a need for equipment that isn’t already available on the market or doesn’t quite meet your needs? Maybe you have a completely new idea that you think would benefit your child. Either way, get in touch with the team at cic@cerebra.org.uk or 01792 483688.