Tag Archives: Help

Social Care in Wales: A Guide for Parents

This guide has been prepared for parents of disabled children in Wales who want to know how to get help for their child’s social care needs. It deals with the responsibilities of local authorities to provide social care for disabled children, as well as support for the parents/carers of those children.

Social Care in Wales: A Guide for Parents Pdf

Gofal Cymdeithasol yng Nghymru Pdf

First published 2017. This edition 2017. Review date 2020.


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Education in England: Statements of Special Educational Needs: A Guide for Parents

Statements SEN EnglandA new system for children with special educational needs (SEN) was introduced in England from September 2014. From that date statements of special educational needs (SEN) were replaced in England (but not Wales) with a new document called an Education, Health and Care plan (EHCP). This means that SEN statements are no longer issued and those children who have a SEN statement are gradually being transferred over to an EHCP. This process is not due to finish until April 2018 which means we are in a transition period where the old and new systems are running alongside each other.

Please note this guide is only relevant to those children who still have a SEN statement and live in England. If you believe that your child has SEN or is being assessed for an EHCP or already has an EHCP please see Cerebra’s Education Health and Care (EHC) Plans (Education in England: A Guide for Parents). If you live in Wales please see Cerebra’s Education in Wales: A Guide for Parents.

Download 'Statements of Special Educational Needs (Education in England: A Guide for Parents)' PDF

First published 2016. This edition 2016. Review date 2018.


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Finding and Assessing Sources of Legal Help: A Guide for Parents

Parents of disabled children might well need to seek legal advice at some stage in their lives for a whole host of reasons. The child may have been injured, may not be getting the educational support to which they are entitled, or they may even need representation at a police station. There will also likely be a need to consider making a will and other financial arrangements for their child.

Identifying and approaching a solicitor for legal help can be one of the more daunting prospects for families and carers of children with a disability. The choice of your solicitor is critically important. This guide is intended to make that approach as straightforward as possible.

Download Finding and Assessing Sources of Legal Help

First published 2013. This edition 2016. Review date 2019.


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Education in Wales: A Guide for Parents

Educationin WalesThis guide has been prepared for parents of children with special educational needs (SEN) and/or disabled children living in Wales. It only applies to Wales and we have written separate guidance for England.

Download 'Education in Wales: A Guide for Parents' PDF

 

 

First published 2016. This edition 2016. Review date 2019.


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Can you help?

Winnie MainHere at Cerebra we’re always looking to recruit budding fundraisers to help us fund our vital services.

We receive no Government funding – relying entirely on the generosity of members of the public to come up with ever changing new and exciting ways to raise money.

With your help, we have already made a difference to the lives of children like Tom, who without his Cerebra grant, would not have been able to do something that other children take for granted – ride a bike.

As well as funding grants for specialist equipment, Cerebra has also provided practical support to families such as Caroline and Dylan’s. With your support, our Sleep Service was able to give advice that finally allowed the whole family to get a decent night’s sleep.

We have been blown away by the amount of support we have received over the years and love the new and creative ways you guys come up with in order to raise those vital funds.

Leon in the shark pool

Swimming with sharks

Thirteen year-old Leon Crawley didn’t want to do a run – he went one step further and swam with sharks!

Grandmother Winnie Forsdike, who had just celebrated her 72nd birthday, took a dip in the freezing cold North Sea on New Year’s Day – raising an impressive £1,400.

The only limit is your imagination so whether you want to challenge yourself with a run or do something a little out there, we want to hear from you!

You could put on a bake sale, shave your head or put on a quiz evening – anything that will get your friends and family involved!

For all the support you need to help us, contact Jessica Thomas on 01267 244222 or jessicat@cerebra.org.uk.

Download our fundraising A – Z below for more ideas.

Fundraising A - Z

Managing Challenging Behaviour Factsheet

Challenging behaviourSome behaviours are a challenge to professionals, teachers, carers and parents. This factsheet gives information on how to manage challenging behaviour by considering five key points:

What is challenging behaviour?
Why does challenging behaviour happen?
Understanding challenging behaviour
Where do I find professional help?
What further information is available?

Download Challenging Behaviour Factsheet PDF

Published 2015. This edition 2016. Review date 2018


 

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Problem-Solving Toolkit

ToolkitThis toolkit aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services. This toolkit aims to unpick these problems and to develop effective strategies for resolving them. You can download the Toolkit below.

Download Problem-Solving Toolkit PDF

Published 2016. This edition 2016. Review date 2019.


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Cerebra Sleep Practitioner Helps the Wright Family

sleeping-boy-1024x683Cerebra also has a team of Sleep Practitioners across the UK who offer help and advice on a variety of sleep issues including settling problems, difficulty sleeping alone and early rising.

Claire Varey, our Sleep Practitioner covering Leeds and the north recently helped the Wright family and specifically 12 year-old Tom Wright.

Mum Claire recently shared her family’s story with us:

“After months of constant sickness our 12 year old son Tom underwent neuro-surgery for a Chiari 1 Malformation. Whilst this was successful and the sickness stopped it meant that Tom’s sleep pattern was completely out of sync. His body clock was wanting him to sleep from about 4.00am – 5.00am and throughout the day.

We tried everything we could think of to improve his sleeping pattern, whilst bearing in mind that he had to recover from a major operation. I cannot fully describe how desperate the situation felt. We felt that we needed specialist help but that it did not seem to be available. I rang FISH (Families Information Service Hub) for further advice and they gave me the contact details for Cerebra.

I immediately contacted Claire at Cerebra and explained the situation. Very quickly she suggested that we undertook delaying Tom’s sleep pattern by 3 hours every day, until it came round to a normal bedtime hour. We implemented it straight away – we were that exhausted and desperate. It wasn’t easy, I can vividly remember waking up at 3.00am thinking the house was on fire because Tom was grilling himself some sausages for tea!

One week later, Claire and Diane (Senior – Regional Officer Supervisor) were booked to come and see us and by that time, we had tentatively altered Tom’s sleep pattern to a “normal” time. We have kept in touch, and I know that Claire and Diane are there if we need them but I am delighted to say that Tom is now sleeping normally and we are once again able to enjoy a family life together.

We are all very grateful for the help Claire and Diane gave us through Cerebra. Without doubt they helped transform Tom’s sleep pattern and gave us support, advice and optimism when we needed it most”.

If you would like to find out more about Cerebra’s Sleep Service, please check our website or contact our Sleep Assistant on 01267 244210 or sleep@cerebra.org.uk.

Social Care in England: A Guide for Parents

This guide has been prepared for parents of disabled children in England who want to know how to get help for their child’s social care needs. It principally deals with the responsibilities of the local authorities to provide social care for disabled children, as well as support for the parents/carers of those children.

Download Social Care in England: A Guide for Parents PDF

First published 2012. This edition 2015. Review date 2018.


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Returning to school: A teacher’s guide for pupils with brain tumours, during and after treatment

Return to school coverThis publication aims to guide teachers and schools faced with the task of supporting a pupil with a brain or spinal tumour who may be absent for some time, or who may have sporadic attendance with a very serious illness and potentially devastating long term effects.

It explains what the pupil may be going through both medically and psychologically. It offers practical strategies for ensuring supportive re-integration back to school. Suggestions are given for how teachers, assistants and SENCOs can provide sustained and targeted support for pupils who face extended treatments, devastating long term side effects or an uncertain future.

Download 'Returning to school: A teacher's guide for pupils with a brain tumour, during and after treatment' PDF

BMA Patient information awards_highly commended

Highly Commended in  Special Award-NHS Trusts in the BMA Patient Information Awards 2016.

 

Factsheet: Recommended teaching strategies for pupils with a brain tumour

Marsden factsheet cover

This factsheet gives information on how a school can assist a pupil with a brain tumour. In particular it pinpoints a number of different strategies to use as memory and cognition in some, but not all, pupils with a brain tumour can be seriously affected by their treatment.

Download 'Factsheet: Recommended teaching strategies for pupils with a brain tumour' PDF

 

Infographic: What to do when a child is diagnosed with a brain tumour

Marsden diagnosis infographicA child with a brain tumour will be encouraged to return to school as soon as possible after initial diagnosis and treatment, even if only for a few hours or half days per week. Here are some tips for the time when the pupil is away from school having treatment and following their return to school.

Download 'What to do when a child is diagnosed with a brain tumour' infographic PDF

Infographic: What to do if a pupil with a brain tumour become palliative and may die

Marsden palliative infographicThis infographic provides information on how the school community can create a climate where the pupil’s independence, hope and dignity are respected, and consideration given to how siblings, other pupils and members of staff may also be feeling.

What to do if a pupil with a brain tumouor becomes palliative and may die' infographic PDF

All information on this page published 2015. This edition 2015. Review date 2018.


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Your response to the following statements will help us to make our information more useful. The questions relate to the resources that can be viewed on this page.