Tag Archives: Event

Accessing Public Services Toolkit Workshops

Our Accessing Public Services Toolkit Workshops are designed to help families access the services that their children need, and are entitled to.

Our popular Accessing Public Services Toolkit aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services. The toolkit aims to unpick these problems and to develop effective strategies for resolving them. You can download the Toolkit here.

These free workshops will use the information and resources in our Accessing Public Services Toolkit to help parents and carers, and the professionals who support them, to access the services that their children need. They will be delivered by a Cerebra professional together with a parent/carer who has first hand experience.

Each workshop lasts for around 3-4 hours and includes a presentation on the toolkit and case studies for group work. There will also be the opportunity to discuss and share experiences. The workshops are provided free of charge.

Workshop dates and locations

12th September – Halton – venue to be confirmed
20th September – The Carers Centre, 24-26 George Street, Croydon, CR0 1PB
9th October – Carers Gloucestershire – venue to be confirmed
10th October – North Somerset – venue to be confirmed
30th October – Islington
7th November – Barnet
8th November – Bridgewater
10th November – Cardiff – venue to be confirmed
17th November – Swindon

If you would like to book a place at any of the above workshops please contact Beverley Hitchcock at beverleyh@cerebra.org.uk.

Coming soon:

We’ll bring you more details of these workshops as soon as they are confirmed:

  • Devon
  • Lincolnshire
  • Warwickshire
  • Leicestershire
  • London
  • Coventry
  • Berkshire
  • Cornwall
  • Hampshire

We are currently looking for groups to host our Problem-solving Toolkit workshops. All we would ask is that the group cover the hire of a venue (preferably with an overhead projector and wifi access), refreshments, publicity and bookings.

If you are interested in holding a workshop, then please contact Beverley Hitchcock at beverleyh@cerebra.org.uk.

Run for Cerebra – August

 

York 10K LogoYork 10K
Sunday 6th August 2017

The Asda Foundation York 10K has been hailed as one of the most beautiful city runs in the country. The city’s historic streets will be a riot of colour when thousands of people pull on their trainers for one of the biggest charity road races in the region. Since its launch in 2009, the event has raised hundreds of thousands of pounds for good causes. Large, enthusiastic crowds help create a vibrant atmosphere as they cheer on the entrants, running for one of the event’s partner charities or another good cause of their choice. The route starts and finishes in Knavesmire Road alongside York Racecourse and takes in some of the city’s stunning scenery and historic landmarks, including the magnificent minster and Clifford’s Tower.

  • Registration fee: £15.00
  • Minimum pledge: £50.00
  • Number of places available: 5
  • More information: http://www.runforall.com/10k/york/?utm_source=RunForCharity&utm_medium=Website&utm_campaign=EventPage
  • Book your place here

 

 

23424486739_c1bfce931a_oMudnificent 7 Obstacle Race
Saturday 12th August
Warwickshire
Mudnificent 7 is the world’s first multi branded Obstacle Course Race. The 7km course will be designed by 7 of the top Obstacle Races in the UK using their most exciting and challenging obstacles to test your strength and stamina through 1km zones.

 

  • Registration fee: £20.00
  • Minimum pledge: £50.00
  • Number of places available: 25
  • More information: http://mudnificent7.co.uk/?utm_source=RunForCharity&utm_medium=Website&utm_campaign=EventPage
  • Book your place here

 

severn bridge halfSevern Bridge Half Marathon
Sunday 27th August 2017
The Severn Bridge Half Marathon returns after three very successful and highly acclaimed events.  The race was voted BEST NEW RACE in the Runners World Personal Best awards. We will be returning to the original route this year. Last year we had to make change the route to accommodate major road works on the A403. The event starts on the Western (Chepstow) end of the Severn Bridge on the motorway itself and after crossing the bridge and back finishes in the event HQ below J2 of the M48, right next to the car park. The event HQ is on a pleasant grassy area overlooking the bridge enabling us to erect all the marquees needed for registration, changing, baggage etc. The route suits both first timers and experienced club runners – it provides something a bit different from your average ‘run-of-the-mill’ city half marathon: stunning views, sea air, scenic country lanes and villages and the opportunity to participate in a unique running event on a closed motorway and across the iconic Severn Bridge.

 

  • Registration fee: £20.00
  • Minimum pledge: £100.00
  • More information: http://www.severnbridgehalfmarathon.com/
  • Book your place here

 

19869599883_9892c79873_oColor Vibe 5K
Sunday 27th August 2017
Essex
The Color Vibes fun run will have you and your friends going crazy with color in the most exciting color filled day of your lives! Did we mention we had color – and lots of it! At the Color Vibe, YOU are our color canvas, and when you’re finished with this 5k run you’ll be an exciting and vivid masterpiece. So tag your friends and hook everybody up with the coolest color blast 5K run to hit the streets.

  • Registration fee: £10.00
  • Minimum pledge: £25.00
  • Number of places available: 25
  • More information: http://uk.thecolorvibe.com/
  • Book your place here

Run for Cerebra – April

Supernova POD for web2Supernova Run 5K
Saturday 1st April
London

Expect to be swept away on a distinctly magical experience as dusk falls on the Queen Elizabeth Olympic Park, London! Each runner will receive an LED head torch to wear during the run and take home, a drawstring bag, a water bottle, a keyring medal, a Supernova bandana, accurate chip timing, training plan, results posted on their My Details account within 48 hrs, race recovery pack and a fantastic running experience.

 

  • Registration fee: £15.00
  • Minimum pledge: £25.00
  • Number of places available: 5
  • More information: https://www.supernovarun.com/events/olympic-park/
  • Book your place here

 

SDP2869-1803Lincoln 10K
Sunday 2nd April 2017
The Asda Foundation City of Lincoln 10K celebrates a special landmark in 2016. It will be the 20th running of the event, which is one of the region’s biggest road races and raises tens of thousands of pounds for charity. Thousands of people from across the UK and abroad are expected to take part in the run on Sunday April 17th. The event boasts a route that takes in some of Lincoln’s historic landmarks, including the cathedral and the city’s Roman Walls.

 

 

  • Registration fee: £15.00
  • Minimum pledge: £50.00
  • Number of places available: 5
  • More information: http://www.runforall.com/10k/city-of-lincoln/
  • Book your place here

 

GMM_40_logoManchester Marathon
Sunday 2nd April 2017
Trafford

Awarded the official title of UK’s Best Marathon in 2014 and 2015 at the Running Awards, The ASICS Greater Manchester Marathon is not to be missed. Superfast course, great entertainment, outstanding crowd support and glorious finish at Emirates Old Trafford, plus a medal and ASICS technical t-shirt for all finishers!

  • Registration fee: £25.00
  • Minimum pledge: £150.00
  • Number of places available: 5
  • More information: http://www.greatermanchestermarathon.com/
  • Book your place here

 

Spartan Race - LogoSpartan Sprint Obstacle Race 5-6K
Saturday 8th April 2017
South East London
Our 2017 Spartan season kicks off in April in our newest venue of St. Clere, South East London. Steeped in history, St Clere was once owned by the father of Henry VIII’s second wife Anne Boleyn, and has hosted visits from the likes of Mozart and Jane Austen. Situated on the scenic North Downs, only 40 minutes from central London by train to Kemsing, and within sight of the M25, St Clere promises to please weekend warriors, trail hunters and obstacle racers alike. Known for its hills, and boasting proximity to the Pilgrims Way – this beautiful yet challenging course will host a Sprint distance, plus thousands of kids will descend from the surrounding area for what promises to be our biggest Junior race of the year. We can’t wait to show you what we have planned.

  • Registration fee: £30.00
  • Minimum pledge: £25.00
  • Number of places available: 25
  • More information: http://www.spartanrace.uk/en
  • Book your place here

 

Yorkshire Half Marathon - Sheffield LogoYorkshire Half Marathon
Sunday 9th April 2017
Sheffield
The inaugural event in 2015 proved an immediate success and with a picturesque and challenging route, the 2016 event on Sunday April 10th is expected to be another winner. The route starts in Arundel Gate and finishes outside the Town Hall in Pinstone Street. In between the course takes the runners into the hills above Sheffield and offers superb views of the Peak District before returning to the city centre. The event also incorporates a triple challenge giving entrants a chance to be crowned ͞King of the Hill͟ in a timed hill climb, triumph in a largely downhill 10K sprint section and cross the finish line first to lift the Plusnet Yorkshire Half Marathon-Sheffield title.

  • Registration fee: £15.00
  • Minimum pledge: £100.00
  • Number of places available: 5
  • More information: http://www.theyorkshiremarathon.com/events/eventsplusnet-yorkshire-half-marathon-sheffield/
  • Book your place here

 

Gear 10KGear 10K
Sunday 30th April 2017
East Anglia

New for 2017, the Grand East Anglia Run (GEAR) 10K is the 10th Asda Foundation 10K event to be added to our ever popular series! Taking place on Sunday 30th April, this well-established run is being staged by Run For All in partnership with Alive Leisure and the Borough Council of King’s Lynn and West Norfolk. This new addition to Run For All’s calendar has a truly scenic route, taking in the pretty town centre, the River Ouse pathway, The Walks as well as a number of iconic, historical buildings such as the Red Mount, the Custom House and Greyfriars Tower.

  • Registration fee: £10.00
  • Minimum pledge: £50.00
  • Number of places available: 5
  • More information: https://www.grandeastangliarun.co.uk/gear-10k/
  • Book your place here

 

MK Rocket 5KMK Rocket 5K
Sunday 30th April 2017
Milton Keynes
A fun and fast 5k race with proven PB potential running from CMK to the stadium with extra special medal. Don’t miss this opportunity to experience the buzz of marathon weekend without the extra mileage!

 

  • Registration fee: £10.00
  • Minimum pledge: £25.00
  • Number of places available: 5
  • More information: http://mkmarathon.com/mk-rocket-5k/
  • Book your place here

 

Run-series-logos_bwRun Hackney Half Marathon
Sunday 30th April 2017
Hackney
Already one of the top ten half marathons in the country, Vitality Run Hackney is the freshest half marathon in the capital! This is a flat, fast half marathon that shows off Hackney and its many green spaces as well as the iconic Queen Elizabeth Olympic Park. Now in its third year, Vitality Run Hackney Half Marathon has firmly marked its position as one of the top ten half marathons in the UK attracting over 13,000 runners in 2015. Hackney knows how to party! And you too can join the carnival as the streets are lined with supporters and live entertainment punctuates the route to lift you across the finish line! We’re expecting places to go fast for 2017 so you’d better get in quick!

  • Registration fee: £30.00
  • Minimum pledge: £100.00
  • Number of places available: 5
  • More information: http://runhackney.com/
  • Book your place here

Run for Cerebra – February

Longleat 10KLongleat 10K
Sunday 5th February 2017
Wiltshire
If you’re looking for beautiful scenery then look no further than the Longleat 10km; starting in front of the magnificent Longleat House the race takes in the estates’ private, and traffic-free roads, with only a short excursion of 400m on public highways as you pass the Bath Arms pub before the final mile downhill to the finish.

 

  • Registration fee: £10.00
  • Minimum pledge: £50.00
  • Number of places available: 5
  • More information: https://www.209events.com/uk-running-events/_
  • Book your place here

 

IMG_0687Barcelona Half Marathon
Sunday 12th February 2017
Barcelona
The half-marathon in Barcelona, also known as the Mitja Marató de Barcelona, is held every March. It’s the second largest running event in Barcelona next to the Marathon.The route takes the runners from the Arc de Triomf to Arc de Triomf which is the finishing line.

  • Registration fee: £15.00
  • Minimum pledge: £100.00
  • Number of places available: 5
  • More information: http://www.halfmarathonbarcelona.com/
  • Book your place here

 


Thorpe-LogoThorpe Park Half Marathon
Sunday 26th February 2017
Surrey
The half-marathon in Barcelona, also known as the Mitja Marató de Barcelona, is held every March. It’s the second largest running event in Barcelona next to the Marathon.The route takes the runners from the Arc de Triomf to Arc de Triomf which is the finishing line.

 

  • Registration fee: £20.00
  • Minimum pledge: £100.00
  • Number of places available: 5
  • More information: http://www.thorpeparkhalf.com/
  • Book your place here

 

 

 

 

Resources – October 2015

ResourcesOur monthly roundup of useful resources for parents of children and young people with neurological conditions.

The Parent Zone
Information for parents about keeping children safe online, talking to children about mental health issues, the meaning of various teenage slang words, and other subjects, (The Parent Zone with the National Crime Agency).

Imagido
Recently-founded company selling a range of educational / young play toys.

Same But Different
A Community Interest Company aiming to raise awareness of disability through arts.

InsureandGo
A further insurance company that parents have found useful for covering travel with children who have pre-existing conditions.  Some others are already listed in our article on travel insurers covering children with disabilities.

Universal Credit and Other Benefits
Guide linking to information on extra support available to people who receive Universal Credit, including help with healthcare costs, free school meals, legal aid and court fees and disability and pregnancy grants and payments, (Dept for Work and Pensions).

Details of the changes to school- and college- age qualifications in England
These relate to a series of summary “postcards” that are being sent round schools (Ofqual).

Health and social care resources

Patient Engagement Hub
A showcase of resources explaining the range of services available from pharmacists / chemists’ shops, (Royal Pharmaceutical Society).

Video about Personal Health Budgets
A solicitor runs through the essentials in about 20 minutes, (Autism Connect).

Care Act 2014
An explanation of the Care Act 2014 which came into force in April this year, (Irwin Mitchell solicitors).

Immunisation
The routine immunisation schedule from Summer 2015,  and Vaccination of individuals with incomplete or uncertain immunisation status, from September 2015, (Public Health England).

NHS Rights in Health Care
A poster for under-18s about confidentiality, making their own decisions in healthcare and making complaints in their own right, (NHS England Youth Forum).

Making a complaint about health and social care services
Information to help you make a complaint in the UK and Channel Islands, (Headway).

Resources for specific conditions

New version of the Transition Toolkit for families of children with autism
Updated, plus new sections including independence skills, safety, digital literacy and other topics to help them move from adolescence to adulthood, (Autism Speaks).  Please note that while the general advice applies anywhere, the references to public service systems and legal matters only relate to the USA.

Cancer and school life
Resources to help teachers and others to support children with cancer, (CLIC Sargent). Also, check out our guide, Returning to School: A teachers guide for pupils with brain tumours, during and after treatment.

Acquired brain injury in children: a parents’ guide
Free 200-page practical guide covering all stages of a child’s journey through treatment, rehabilitation and transition to adulthood (Children’s Trust).

Dealing with a Brain Injury
Suggestions for understanding and dealing with a changed young person and changed family dynamics after an adolescent has had a brain injury, (Caron Gan, Bloorview Research Institute, Canada).

Concussion Consortium
A new website that includes advice about the type of traumatic brain injury that can occur in sports activities, (Kern County, USA).

Everyday triumphs: small steps to a healthier heart for mental health service users [aged 14 and over]
This resource is based on statistics indicating that people with severe mental health conditions are at a higher risk of developing heart disease (British Heart Foundation).

Epilepsy films and booklets
A collection designed for people with epilepsy and learning disabilities, (Nottinghamshire Healthcare).

Event

First annual Challenge Poverty lecture
Glasgow, 22 October 2015
A lecture given by Naomi Eisenstadt, the Scottish Government’s new Independent Advisor on Poverty and Inequality, about what can be done in Scotland.  Free but must be booked in advance, (Poverty Alliance and Centre for Contemporary Arts).

Like to run? Why not run for Cerebra

Cecilia Bufton

Cecilia Bufton

Hello. My name is Cecilia Bufton and I have just started in the brand new role of Events Co-ordinator at Cerebra.

Cerebra does some fantastic work supporting children and families who are living with neurological conditions, but we rely on the generosity and commitment of our supporters to fund everything that we do. Each year lots of people up and down the country put on their running shoes and challenge themselves to raise money for the charity – and every penny they raise is vital.

I’m looking for people to join in with everything from fun runs to half and full marathons and the gruelling, but great fun, challenges such as Tough Mudder to raise awareness and funds for Cerebra. I will be here to support you, give you guidance in fundraising, provide all the resources you need and even cheer you over the finish line!

To tell you a bit about me, I actually worked at Cerebra about seven years ago as a telephone fundraiser. I left to go to university, but never forgot what I experienced as a friendly charity doing some great work to help families in need. I can simply say that this role is perfect for me and finding a job that has the potential to give you a great purpose and happiness is rare to come by.

So whether you’re a keen runner already or if you have never run before but would like to start, why not have fun, get fit and support Cerebra at the same time. Please get in touch or pass this information on to friends or family and let’s make a difference and keep fit in 2016.

You can contact me on:
Email: CeciliaB@cerebra.org.uk
Tel: 01267 242 586
Mobile: 07580976497

I look forward to hearing from you.

Professor Luke Clements

clementsljHelping Families to Access their Legal Rights


Affiliation:
Professor at Cardiff Law School and a solicitor

Biography: Luke Clements is the Cerebra Professor of Law at Cardiff Law School and a consultant solicitor specialising in public and human rights proceedings on behalf of socially excluded groups, primarily disabled people and Roma. He has conducted and advised on many cases before the Commission and Court of Human Rights in Strasbourg including the first Roma case to reach that court (Buckley v. UK 1996).

Luke is Director of the Law School’s Centre for Health and Social Care Law and his current research concerns the role of the law in both exacerbating and combating the social exclusion experienced by (in particular) disabled people and their carers. Luke is in charge of two taught Masters programmes: (1) Human Rights Law and (2) Social Care Law.

Luke leads the Cerebra research programme that focuses on ‘delivering legal rights and entitlements to children with neurodevelopmental disorders and their families’ for which Cerebra has endowed a research Chair at the Law School. The research analyses (amongst other things) the outcomes of the students’ pro bono advice scheme which provides practical advice to families experiencing difficulties in accessing health, social care and educational support services. Luke is a key partner in the Chronic Disorders of Consciousness Research Centre (involving York and Warwick Universities) a multi-disciplinary group of researchers studying chronic disorders of consciousness.

Luke is a leading expert on UK community care law and the rights of disabled people to social and health care support and in 2013 was the Special Adviser to the Joint Parliamentary Select Committee scrutinising the draft Care and Support Bill. Luke has also been involved in the drafting of Private Members Bills relating to the rights of carers, notably the Bills that became the Carers (Recognition and Services) Act 1995 and the Carers (Equal Opportunities) Act 2004. He is on the Editorial Boards of a number of journals, including the European Human Rights Law Review (Sweet & Maxwell), Disability and Society (Routledge), the African Disability Rights Yearbook (University of Pretoria), Child and Family Law Quarterly (Jordans), The Journal of Social Care and Neurodisability (Emerald), the Community Care Law Reports (Legal Action Group) and Social Care Law Today (Arden Davies Publishing).

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Nigel Ellis

Nigel Ellis picCommonly occurring problems experienced by disabled children and their families


Affiliation:
Executive Director, Local Government Ombudsman

Biography: Nigel joined the Local Government Ombudsman in June 2010. Before this he was Head of National Inspection at the health and social care regulator, the Care Quality Commission. Previously, Nigel was Head of Investigations at the Healthcare Commission, where he led high profile NHS investigations, such as the one into Mid Staffordshire Trust. He has worked in different roles in the voluntary sector, including several years as Director at the MS Society, a national charity for people with multiple sclerosis.

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Dr Maggie Atkinson

Maggie‘We want to help people see things our way’


Affiliation:
Children’s Commissioner for England since March 2010

Biography: Dr Maggie Atkinson is the second post holder in this vital role, which enables her to promote and protect the rights of the child, and to encourage children and young people, families, opinion shapers, policy makers and practitioners to join her. After a 35-year career working with and for children and young people, she is a fearless defender of their entitlement to be valued and heard as young citizens making positive contributions to the society in which they will, in their turn, become adults. Maggie has led the Office of the Children’s Commissioner in a period when its influence has continued to increase, leading to positive changes in the life chances of England’s children and young people, especially the most vulnerable and marginalised among them. Her office’s small team has helped to prompt policy and practice changes for asylum seeking and refugee children, children in contact with social care, the family courts and other vital services, those excluded from school, in conflict with the law, or struggling with mental and emotional health difficulties. She is now leading the Office of the Children’s Commissioner through the strengthening of its role and remit that will follow from legislative change being made during 2013-14. She is a member of the Department of Health’s Children and Young People’s Health Outcomes Forum, with a particular focus on challenging England’s many social inequalities and their negative effects on children’s health.

Maggie is a Cambridge graduate. Training at Sheffield University, she was a secondary school teacher of English and Drama, including leading a high school department, before working on a National Curriculum English Language initiative and then in training, inspection, school and service improvement in local government. She was the first Director of Children’s Services for Gateshead during radical changes following the Children Act 2004. During her six years there she was the first solo President of the Association of Directors of Children’s Services (ADCS) in 2008-09.

Maggie graduated as a Doctor in Education (EdD) at Keele University in 2008 and is now an Honorary Professor there. She was awarded an Honorary Doctorate of Civil Letters (DCL Hon Causa) from Northumbria University in 2010.