Tag Archives: conference

Cerebra Sleep Conference – Tackling Sleep Disturbances in Children with a Learning Disability

On Wednesday 28th June 2017 we held a one day conference on sleep disturbances in children with brain conditions to share developments in sleep research and look at how this new information will affect parents, carers and professionals.

The conference was full of useful information and a great chance for people to meet and discuss ideas. You can find out more about the talks below and download some of the presentations.

Session 1: Understanding Sleep

An Introduction to Sleep

Dr Andy Bagshaw who is a Reader in Imaging Neuroscience at the University of Birmingham gave a fascinating talk on what sleep is and why it so important.

Download the presentation as a PDF

Sleep and breathing in children with neurodevelopmental disorders

Dr Cathy Hill is an Associate Professor in Child Health at the University of Southampton and Honorary Consultant in Sleep Medicine at Southampton Children’s Hospital where she has built up a multi-disciplinary children’s sleep disorder service. Cathy’s talk gave an overview of the effect breathing difficulties during sleep can have on brain function and development, including data from her research in children with severe motor disorders and Down syndrome.

Session 2: Family and Support

The bedtime story of sleep deprivation

Leeann Stevenson is the mother of three children, including Lily who is 10 and has Smith-Magenis Syndrome (SMS), a condition that commonly features disrupted sleep patterns. Leeann’s talk was about the impact having a child with sleep disturbances has on family life.

Download the presentation as a PDF

Cerebra’s Sleep Services

Claire Varey, one of Cerebra’s Sleep Practitioner gave a presentation on the work of our Sleep Service and how it can help families with children who have difficulty sleeping.

Download the presentation as a PDF

Session 3: Current Sleep Research

Sleep, challenging behaviour and pain in neurodevelopmental disorders

Dr Caroline Richards who is leading Cerebra funded research at the Cerebra Centre for Neurodevelopmental Disorders – University of Birmingham gave a talk on the links between pain, challenging behaviour and sleep in children with neurodevelopmental disorders.

Download the presentation as a PDF

Sleep and cognition in neurodevelopmental disorders

Dr Anna Joyce is a Research Associate in Psychology at Coventry University. Anna’s talk described various sleep problems experienced by children with neurodevelopmental disorders and how sleep affects children’s cognition, illustrated with some of Anna’s recent work.

Active research at the Cerebra Centre

Georgie Agar is a PhD student at the Cerebra Centre for Neurodevelopmental Disorders at the University of Birmgham. Georgie’s talk was all about the research being done at the Centre.

Download the presentation as a PDF


The conference also launched our new Sleep guide that the our Sleep Team, together with the Cerebra Centre for Neurodevelopmental Disorders – University of Birmingham, have developed to assist parents to manage their child’s sleep disturbance.

All of our information resources are covered by The Information Standard, a recognised quality mark which indicates that our information is accurate, accessible, impartial, balanced, based on evidence and well-written.

Mental Health and Well-being Conference Write Up

Improving Mental Health and Wellbeing for Young People with Autism, ADHD and Learning DisabilitiesOn the 28th April 2016 Cerebra held its Annual Conference at the Royal Society of Medicine in London on ‘Improving Mental Health and Well-being for Young People with Autism,  ADHD and Learning Disabilities’.

Cerebra’s aim is to ensure that the needs, and voices, of young people with these conditions are not lost in the current discussion surrounding mental health.

With the exceptionally high calibre of professional speakers, including the involvement of a number of young people and the variety of topics covered, hopefully delegates felt that they enhanced their knowledge and understanding by attending our Conference.

The first session of the Conference was entitled ‘Risks to mental health and well-being in children and young people with a neurodisability’. This part looked at the current research that is being conducted around genetic and biological causes of mental health disorders, mental health problems in children with intellectual disability and co-occurring psychiatric disorders in children with Autism Spectrum Disorder. The speakers in this session were:

After a superb lunch, the keynote address centred on ‘Mental Well-being and involving young people in defining the agenda’. This presentation was undertaken by:

This session focussed on the benefits of children and young people’s involvement and participation in mental health and a short video was shown where young people talked about what it means to grow up happy. Both Kiri and Jack spoke, very bravely, of their own experiences and perspective of living with mental health issues and autism. They also stressed the importance of listening to young people.

Following a short break, the final session entitled ‘Working to improve mental health and well-being’ comprised of talks given by:

At the end of each of the sessions the Conference Chair, Professor Stuart Logan (Cerebra Professor of Paediatric Epidemiology, PenCRU at the University of Exeter), fielded questions from delegates which gave them the opportunity to clarify matters arising from the presentations. The speakers were able to answer these questions clearly and make the subject matter understandable.

Additionally there were a number of exhibitors at the Conference who included Leigh Day, Hyphen Law, Tomcat, A Stitch Different, The Clarity Partnership, Autistica and The Challenging Behaviour Foundation. Alongside these there were information stands for our Academic Chairs at: University of Birmingham, Cerebra Innovation Centre, University of Exeter, University of Leeds and University of Warwick. Information was also available regarding our Family Research Ambassadors Projects.

Cerebra would like to thank all of the speakers and exhibitors for giving up their time to join us on the day. We are particularly grateful to have received sponsorship from:

  • Leigh Day
  • Foot Anstey
  • Hobbs Rehabilitation
  • Lyons Davisdon
  • Hyphen Law
  • Tomcat
  • Autistica
  • The Challenging Behaviour Foundation
  • A Stitch Different Community Group
  • The Clarity Partnership

St John’s Chambers raise £2,400

Gareth Owens receives the cheque from St John's Chambers

Gareth Owens receives the cheque from St John’s Chambers

St John’s Chambers Personal Injury and Clinical Negligence teams hosted a child brain injury conference on 13th October 2015 in aid of Cerebra and raised a fantastic sum of £2,400.

The conference, sponsored by Nestor and held at The Marriott Royal in Bristol, was attended by over 80 delegates. Guest speakers included Dr Anna Adlam, Chartered Clinical Psychologist and academic Neuropsychologist from the University of Exeter, Dr Michael Carter, Paediatric Neurosurgeon and Claire Broughton-Welsh, Occupational Therapist and Expert Witness with Jacqueline Webb & Co. Speakers and Christopher Sharp QC, Emma Zeb and Glyn Edwards, Head of St. John’s Chambers’ Personal Injury team.

Gareth Owens, our Corporate Development Officer said: “Cerebra would like to say a big ‘thank you’ to St John’s Chambers for supporting us through their October conference. The monies raised will go towards our grant scheme where they will help fund vital equipment and services for children with neurological conditions living in the South West.”

Thank you to everyone involved in raising money for us through the conference.

Professor Luke Clements

clementsljHelping Families to Access their Legal Rights


Affiliation:
Professor at Cardiff Law School and a solicitor

Biography: Luke Clements is the Cerebra Professor of Law at Cardiff Law School and a consultant solicitor specialising in public and human rights proceedings on behalf of socially excluded groups, primarily disabled people and Roma. He has conducted and advised on many cases before the Commission and Court of Human Rights in Strasbourg including the first Roma case to reach that court (Buckley v. UK 1996).

Luke is Director of the Law School’s Centre for Health and Social Care Law and his current research concerns the role of the law in both exacerbating and combating the social exclusion experienced by (in particular) disabled people and their carers. Luke is in charge of two taught Masters programmes: (1) Human Rights Law and (2) Social Care Law.

Luke leads the Cerebra research programme that focuses on ‘delivering legal rights and entitlements to children with neurodevelopmental disorders and their families’ for which Cerebra has endowed a research Chair at the Law School. The research analyses (amongst other things) the outcomes of the students’ pro bono advice scheme which provides practical advice to families experiencing difficulties in accessing health, social care and educational support services. Luke is a key partner in the Chronic Disorders of Consciousness Research Centre (involving York and Warwick Universities) a multi-disciplinary group of researchers studying chronic disorders of consciousness.

Luke is a leading expert on UK community care law and the rights of disabled people to social and health care support and in 2013 was the Special Adviser to the Joint Parliamentary Select Committee scrutinising the draft Care and Support Bill. Luke has also been involved in the drafting of Private Members Bills relating to the rights of carers, notably the Bills that became the Carers (Recognition and Services) Act 1995 and the Carers (Equal Opportunities) Act 2004. He is on the Editorial Boards of a number of journals, including the European Human Rights Law Review (Sweet & Maxwell), Disability and Society (Routledge), the African Disability Rights Yearbook (University of Pretoria), Child and Family Law Quarterly (Jordans), The Journal of Social Care and Neurodisability (Emerald), the Community Care Law Reports (Legal Action Group) and Social Care Law Today (Arden Davies Publishing).

Invalid button attribute.

 

 

Annual Conference 2014

academic%20conference‘Problem solving: accessing decent services and support for children with complex needs and their families’

On Tuesday 7 October 2014 we held our annual conference for academics, practitioners, educators and carers. The day provided up to date, evidence-based information on the commonly encountered barriers experienced by disabled children and their families in accessing their legal rights and practical approaches to breaking down these barriers.

We’d like to thank everyone who attended and our excellent speakers for making the day a success.

Videos of the presentations and speaker slides from the day can be accessed by clicking on the the speakers names below.

Key speakers included:

    • Professor Chris Oliver (University of Birmingham): Meeting the needs of children with severe intellectual disability: From response to strategy.
    • Professor Richard Hastings (Warwick University): Parents’ and service users’ experiences of challenging behaviour services.
    • Dr Janet Read and Dr Claire Blackburn (Warwick Medical School): Socio-economic influences on outcomes for disabled children.
    • Alison Thompson (Parent and author): Accessing services: the view from a parent.
    • Dr Maggie Atkinson (Children’s Commissioner for England): ‘We want to help people see things our way’.
    • Nigel Ellis (Executive Director and Local Government Ombudsman): Commonly occurring problems experienced by disabled children and their families.
    • Polly Sweeny (Associate solicitor, Public Law Department Irwin Mitchell): Educational, Health and Care Plans: legal rights of disabled children under the Children and Families Act 2014.
    • Professor Luke Clements (Cardiff University Law School): Helping families to access their legal rights.

Please click here to see the Question and Answer Session for the day.

Sponsors for this event:

Irwin Mitchell Cerebra would like to thank Irwin Mitchell Solicitors who are sponsoring and supporting this event.

Full colour Irwin Mitchell logo

The Big Lottery Fund Cerebra would like to say a huge thank you to the Big Lottery Fund, who have provided a grant of £9,900 towards the charity’s annual conference.

Other sponsors

Olympus Community logos         Great%20Portland%20Estates         Print     scot bader

Polly Sweeney

Polly%20SweeneyEducation, Health and Care Plans: legal rights of disabled children under the Children and Families Act 2014

Affiliation: Associate solicitor at Irwin Mitchell LLP

Biography: Polly has experience in a broad range of public law practice, and specialises in community care, healthcare and medical treatment and education law (including representing parents at special educational needs and disability tribunals). She is also experienced in cases in the Court of Protection regarding mental capacity, best interests and deprivation of liberty, and is regularly instructed by the Official Solicitor to act on behalf of vulnerable adults on a range of health and welfare matters including capacity to marry or engage in sexual relations and disputes about contact and residence. She is involved in a number of pro bono initiatives and regularly delivers legal advice workshops to parents, carers and charities.

Invalid button attribute.

 

Nigel Ellis

Nigel Ellis picCommonly occurring problems experienced by disabled children and their families


Affiliation:
Executive Director, Local Government Ombudsman

Biography: Nigel joined the Local Government Ombudsman in June 2010. Before this he was Head of National Inspection at the health and social care regulator, the Care Quality Commission. Previously, Nigel was Head of Investigations at the Healthcare Commission, where he led high profile NHS investigations, such as the one into Mid Staffordshire Trust. He has worked in different roles in the voluntary sector, including several years as Director at the MS Society, a national charity for people with multiple sclerosis.

Invalid button attribute.

Dr Maggie Atkinson

Maggie‘We want to help people see things our way’


Affiliation:
Children’s Commissioner for England since March 2010

Biography: Dr Maggie Atkinson is the second post holder in this vital role, which enables her to promote and protect the rights of the child, and to encourage children and young people, families, opinion shapers, policy makers and practitioners to join her. After a 35-year career working with and for children and young people, she is a fearless defender of their entitlement to be valued and heard as young citizens making positive contributions to the society in which they will, in their turn, become adults. Maggie has led the Office of the Children’s Commissioner in a period when its influence has continued to increase, leading to positive changes in the life chances of England’s children and young people, especially the most vulnerable and marginalised among them. Her office’s small team has helped to prompt policy and practice changes for asylum seeking and refugee children, children in contact with social care, the family courts and other vital services, those excluded from school, in conflict with the law, or struggling with mental and emotional health difficulties. She is now leading the Office of the Children’s Commissioner through the strengthening of its role and remit that will follow from legislative change being made during 2013-14. She is a member of the Department of Health’s Children and Young People’s Health Outcomes Forum, with a particular focus on challenging England’s many social inequalities and their negative effects on children’s health.

Maggie is a Cambridge graduate. Training at Sheffield University, she was a secondary school teacher of English and Drama, including leading a high school department, before working on a National Curriculum English Language initiative and then in training, inspection, school and service improvement in local government. She was the first Director of Children’s Services for Gateshead during radical changes following the Children Act 2004. During her six years there she was the first solo President of the Association of Directors of Children’s Services (ADCS) in 2008-09.

Maggie graduated as a Doctor in Education (EdD) at Keele University in 2008 and is now an Honorary Professor there. She was awarded an Honorary Doctorate of Civil Letters (DCL Hon Causa) from Northumbria University in 2010.

Alison Thompson

Alison%20thumbnailAccessing Services: the view from a parent


Biography:
Alison Thompson is an author, speaker and mum to Daniel, who was diagnosed with ADHD when he was six. Frustrated with the lack of ADHD books written for parents in the UK, Alison wrote her own book, The Boy From Hell: Life with a Child with ADHD in 2013. Since then she has spoken at many events and conferences, and has written articles for Primary Times and SEN Magazine. Alison is the voluntary parent advisor for her local support group, ADHD Oxfordshire, and is currently training to be a coach, specialising in supporting parents and teachers who want to help ADHD children reach their full potential.