We’re taking a look at Same but Different, an organisation that uses the arts to raise awareness of disability and counteract prejudice.
Ceridwen Hughes, founder of Same But Different, explains: “1 in 17 people, or 7% of the population, will be affected by a rare disease at some point in their lives. This equates to approximately 3.5 million people in the UK and 30 million people across Europe. There are between 6,000 and 8,000 known rare diseases which means collectively they affect a considerable number of people. (Source: Rare Disease UK)”.
As awareness around a condition grows so too does acceptance. The Same but Different organization was established after Ceridwen recognised a need to highlight the people behind the conditions. She herself has experience of a rare syndrome as her son has Moebius Syndrome.
One of the organisation’s recent projects is the Rare Project and its aim is to shine a light on some of these rare diseases, highlighting that just because a person has a disability it should not be all that people see. In this project they introduce people, through a series of high profile exhibitions, an online gallery, social media and press articles.
Ceridwen is also the photographer behind the project and takes time to ensure the images capture the personality of those being photographed. She said: “Sometimes the person being photographed has complex needs and we take time to accommodate them and ensure they feel comfortable. My son has a condition that means he looks different and therefore I appreciate the need to really ensure the images taken capture the personality.”
Among the children to be featured as part of the Rare Project are Isobel and Abigail, twins who have Down’s Syndrome. You can see their images, along with the other children who have been featured as part of the project here.
If you would like to take part in the project please contact firstname.lastname@example.org.