Cerebra also has a team of Sleep Practitioners across the UK who offer help and advice on a variety of sleep issues including settling problems, difficulty sleeping alone and early rising.
Claire Varey, our Sleep Practitioner covering Leeds and the north recently helped the Wright family and specifically 12 year-old Tom Wright.
Mum Claire recently shared her family’s story with us:
“After months of constant sickness our 12 year old son Tom underwent neuro-surgery for a Chiari 1 Malformation. Whilst this was successful and the sickness stopped it meant that Tom’s sleep pattern was completely out of sync. His body clock was wanting him to sleep from about 4.00am – 5.00am and throughout the day.
We tried everything we could think of to improve his sleeping pattern, whilst bearing in mind that he had to recover from a major operation. I cannot fully describe how desperate the situation felt. We felt that we needed specialist help but that it did not seem to be available. I rang FISH (Families Information Service Hub) for further advice and they gave me the contact details for Cerebra.
I immediately contacted Claire at Cerebra and explained the situation. Very quickly she suggested that we undertook delaying Tom’s sleep pattern by 3 hours every day, until it came round to a normal bedtime hour. We implemented it straight away – we were that exhausted and desperate. It wasn’t easy, I can vividly remember waking up at 3.00am thinking the house was on fire because Tom was grilling himself some sausages for tea!
One week later, Claire and Diane (Senior – Regional Officer Supervisor) were booked to come and see us and by that time, we had tentatively altered Tom’s sleep pattern to a “normal” time. We have kept in touch, and I know that Claire and Diane are there if we need them but I am delighted to say that Tom is now sleeping normally and we are once again able to enjoy a family life together.
We are all very grateful for the help Claire and Diane gave us through Cerebra. Without doubt they helped transform Tom’s sleep pattern and gave us support, advice and optimism when we needed it most”.