Liz and Jim are parents to 15 month old Holly and they recently contacted the Cerebra Innovation Centre (CIC) with a challenge to complete in time for their daughter’s first birthday. They told us their story:
“We contacted the Cerebra Innovation Centre (CIC) after realising the first birthday present we had bought for our daughter, when she was just a month old, was completely inappropriate. Holly loves rocking and we really wanted to get her a rocking animal for her first birthday and we found a dinosaur. The problem was that it was unlikely Holly would ever be able to use it as it had no harness or support.
Holly has a rare chromosome disorder. She has duplications on 2q24.2 and 2q24.3. This manifests as Holly having hypotonia, global developmental delay, visual impairment, Sandifer Syndrome and food allergies. She is at a high risk of developing autism and epilepsy but we are lucky that she seems to be ok at the moment. As Holly has hypotonia her core is very weak and so she struggles to sit unsupported.
Holly is a really happy, wonderful little person and we wanted her to be able to enjoy her rocking dinosaur. We approached Ross and the team at the CIC to see if it would be possible to convert her toy so she can enjoy it safely, as it is one of the few toys she has that is just for her to have fun and enjoy being a little girl. They rose to the challenge beautifully and added pieces to it so that we could attach the Firefly GoTo seat, which would keep her safe.
Holly loves her dinosaur, she can make it rock by herself and she is independent. We are so grateful to Cerebra for making this possible for Holly. It even arrived back in time for her first birthday!”
If you have an idea for a piece of equipment that you would like the CIC team to build, you can get in touch with them at firstname.lastname@example.org or 01792 483688.