Category Archives: Fundraising

Join our team and be a Triathlon Superhero!

The Superhero Tri is the UK’s one and only disability sports series for the everyday Superhero and their family and friends.

The event will take place in Dorney Lake, Windsor on 19th August and promises to be a fun filled day with the chance to meet and take part alongside Paralympian and celebrity team captains.

We’re thrilled to be a charity partner for the event and we’re looking for people to join us on Team Cerebra. There are lots of different ways to take part, the only requirement is that one person on your team (or you if you choose to fly solo!) must have a disability:

  • Team up – unite with disabled and non-disabled friends and family to share the fun
  • Grab a sidekick – tow a teamate in the water and push or pull them around the course
  • Fly solo – for those who want to take on all the triathlon stages by themselves.

There are also three different distances that you can choose from:

  • Sprint – 150m swim, 3k cycle, 1k run
  • Half – 400m swim, 10k cycle, 2.5k run
  • Full – 750m swim, 20k cycle, 5k run

Father and daughter team, Rob and Poppy, have already signed up and have been chosen to take part in a special celebrity race. They’ll be partnered with Olympian Chris Jones and will be competing against the likes of Hannah Cockcroft and comedian and talk show host Adam Hills.

You can find out lots more about the event on the Superhero Series website, but if you’d like a chat about the different options and how we can help you to take part please just get in touch with ceciliab@cerebra.org.uk.

We’ve got people on hand to help out with the running, cycling or swimming legs and may also be able to supply some equipment – including a specially designed boat.

We’d love you to join us and show off your superpower. So please get in touch – it’s going to be awesome!

 

 

Poppy to Take on Second Triathlon Challenge

Rob and Poppy

Rob and Poppy

Last year, eleven year old Poppy Jones realised her dream of competing in the Cardiff Triathlon. This was particularly challenging for Poppy as she has chronic lung disease and quadriplegic Cerebral Palsy. This means she can’t sit, stand, roll or support herself and life is a daily challenge for her, but having a life-limiting condition doesn’t stop her having fun.

Poppy’s Dad Rob helped make her dream come true by pushing/pulling her around the course using custom made equipment specially designed by our Innovation Centre (CIC).

The father and daughter team will be once again rising to the challenge, taking part in the Swansea Triathlon on 28th May.

Rob’s motivation for doing this is simply to help his daughter: “taking part in this triathlon is so exciting for her and psychologically it will really benefit her. She gets so frustrated at the limits her condition puts on her and this will really focus her mind on what she can do. Poppy doesn’t think ‘I can’t’ but rather ‘with a little help I can’. I’ve got my work cut out though as Poppy doesn’t want to just take part – she wants to win!”

The team at team at the Innovation Centre, who designed the equipment that allowed Poppy to take part in the Triathlon last year,  took this opportunity to re-design some of the equipment to allow Poppy to compete on an even larger scale.

“Last year, we designed a chair and boat in Poppy’s favourite colour – yellow,” says Dr Ross Head from the CIC.

“For this year’s challenge, we’ve modified both products to make them more efficient; to make them faster – and to change the look to match Poppy’s new favourite colour, orange!

“Poppy’s also grown a lot since last year’s triathlon and the boat we built last year was too small. So I redesigned the boat to be bigger, however this meant it would be heavier, so I started from scratch using everything I had learnt about hydrodynamics to ensure the boat would be fast, efficient and create the minimum resistance so that Rob could swim the course. This year’s boat uses a V-shaped tri- hull. This allows speed through the water but is given stability by the two smaller outrigger hulls.

“Poppy’s Triathlon Chair has also been upgraded to make it faster and more comfortable. The guys at V-Trak very kindly donated some high quality wheels to help them roll to the finish line. It has upgraded bespoke components which will ensure efficiency, a speedy transition from cycling to running and ensure Poppy’s safety.“

The CIC team recently tested the boat out on the water (see below for photos).

You can sponsor Rob and Poppy through their Just Giving page.

 

 

Sleep Walking to Success

The walkers before they set of

The walkers before they set off

On Saturday 6th May we held our second walk to the top of Pen-y-Fan in the Brecon Beacons to raise vital funds for our Sleep Service.

Following a safety briefing from the fabulous mountain rescue team, our brave walkers grabbed a glow stick each and, with an overwhelming sense of camaraderie, made their way to the summit!

This year, we were also joined by the Côr CF1 choir who not only braved the walk to the top of Pen-y-Fan but then entertained everyone with a few songs at the top. They were in fine voice, even after the trek up the mountain!

So far, this year’s Sleep Walk has raised well over £3000 and this will help fund our Sleep Service which aims to help families with children with brain conditions get a good night’s sleep.

We would like to say a big thank you to everyone who took part in the walk and for joining us on our journey to help families discover a better life together.

Give a Golden Pound!

With the launch of the new pound coin, our ‘Golden Pound’ campaign is a great way to give your old pound coins a new home!

Your donation can help make a difference to children like Holly.

Donating your £1 couldn’t be easier:

  • Text GOLD34 £1 to 70070 to donate £1
  • Call 01267 244216
  • Donate online using one of the donate buttons below:

Give just one golden pound today and help a family with a child with a brain condition discover a better life together. Thank you.

Sleep Walk Registration Form

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State/Province
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Support for our Problem-Solving Toolkit Workshops

problem solving toolkitWe are very grateful to The Santander Community Fund, via the Community Foundation in Wales, and The Boshier-Hinton Foundation who have each awarded us a £5,000 grant to fund our Problem Solving Toolkit Workshops.

Their generous support means that we can help more parents and carers to access health, social care and education support services for their child, helping them to discover a better life together.

Our Problem Solving Toolkit and Workshops are designed to help families access the services that their children need, and are entitled to. The Toolkit is a comprehensive, practical and easy to use guide, packed with useful advice, solutions and precedent letters. You can download the Toolkit here.

Problem Solving Toolkit Workshops

This year we have launched our Problem Solving Toolkit Workshops which use the information and resources in the Toolkit to give parents, carers and professionals the skills and knowledge they need to advocate for themselves. Each workshop lasts for 3-4 hours and includes a presentation, case studies for group work and a chance to discuss and share experiences. The workshops are free.

We’ve had some great feedback from parents and professionals who attended our initial workshop:

  • “A wonderful guide to help parents, thank you so much. It is a real maze and you have provided a crutch for parents to use”. (A parent)
  • “I will be recommending this resource to the families that I work with. It is wonderful”.  (A professional)

Thanks again to The Santander Community Fund, via the Community Foundation in Wales, and The Boshier-Hinton Foundation for their generous support.

Carmarthen Florist Creates Cerebra Bouquet

Carmarthen based florist, FloralDecor by Sienna, has come up with a marvellous way to raise funds for Cerebra – she has created a beautiful Cerebra bouquet!

There are three different bouquets available, the Classic, Signature and Luxury Bouquets which are £30, £40 and £50 respectively.

10% from the sale of each of these bouquets comes directly to Cerebra and each is exquisitely gift wrapped and presented in a gift bag.

Please note that due to the seasonal availability of flowers it may be necessary to vary individual stems from those shown. The skilled florists may substitute  flowers for one similar in style quality and value.

We think the bouquets look stunning but don’t take our word for it, take a look!

You can contact Sienna on 01267 220726 or info@floraldecorbysienna.co.uk.

Cardiff Quiz Evening a Success

Les Quizerables accept their prize

Les Quizerables accept their prize

On 28th February we held our first quiz evening at the Village Hotel in Cardiff.

Teams competed for the title of “Cardiff’s Smartest”, answering questions on topics from sport to food and drink. There was even a taste testing round where teams had to guess the branded product.

Cerebra Ambassador Sian Taylor attended the evening to share how Cerebra has helped her family since the birth of her son Ollie, who has the rare condition Wolf Hirschorn Syndrome.

In addition to the quiz, we also held a hugely successful raffle.

The winning team, who went by the name Les Quizerables even kindly donated their £300 prize back to Cerebra.

The event raised nearly £800 in total and everyone at Cerebra would like to say a massive thank you to everyone who made the event a success.

Centric supports Cerebra

We are delighted that South Wales recruitment agency Centric have chosen us as their charity of the year for 2017!

Communications Executive for Centric, Grace Busby told us how delighted they are to be partners with us:

A brain condition has a life-long impact not just on the child, but their whole family and Cerebra do an amazing job of helping to support those families and create the best opportunities for them. Everyone at Centric Recruitment is passionate and committed to fundraising and we are thrilled to get behind such a fantastic cause as Cerebra. We look forward to working together in 2017!

Centric will be supporting us with lots of fundraising events throughout the year and their staff were delighted to recently meet with one of the families we help –  Ryan, Dylan and Taran Hooper, along with their mum Vanessa

If your organisation would like to join us on our journey to help families with a child with a brain condition to discover a better life together, please get in touch with Sadie France on 01267 244216 or sadief@cerebra.org.uk.

Collection Box Volunteers Needed

Lyn Palfreyman and Betty Blyth with Box Co-ordinator Melanie Clark

Lyn Palfreyman and Betty Blyth with Box Co-ordinator Melanie Clark

Our collection boxes can be found on the counters of shops, cafes and businesses all over the country. It’s hard to believe but all that spare change really does add up.

On average our collection boxes raise an incredible £55,000 for us!  Lynn Palfreyman and Betty Blyth run a small shop on a campsite in Burton Constable in Yorkshire. They have had one of our collection boxes since 2000 and to date have collected an amazing £27,469 in spare change.

To develop our collection box scheme we are building a team of volunteers across the UK who can build contacts with local businesses in their areas and find new homes to place our boxes.

If you have some time to spare and would like to find out more, please get in touch with our Box Co-Ordinator Melanie Clark on 01267 242587 or melaniec@cerebra.org.uk.

Every penny we raise helps families with children with a brain condition to discover a better life together. It’s an incredibly rewarding journey for everyone involved – why not be a part of it?