Category Archives: Fundraising

Rhys and Anthony Take on Superhero Triathlon

Rhys, Anthony and Kevin

Rhys, Anthony and Kevin

When Rhys watched his sister take part in her first sports day, he wanted nothing more than to join in. His limited mobility meant that he couldn’t run the race himself but dad Anthony had a great idea to help Rhys get involved.

Anthony said: “I couldnt disappoint Rhys after he had such a great afternoon and was getting excited about racing so I carried him to the starting line and when it was time to go we were off. I held my arms round him, kicking his legs forward as if he was running himself.  He was absolutely hysterical with laughter all the way, people clapping and cheering him on, he was loving it! It was brilliant and both mum and I were mega chuffed that we did it.”

Rhys enjoyed the experience so much that Anthony was inspired to take on a new challenge.

“This is what has inspired me and my friend Kevin Davies to do something with him…not for him…by entering the Superhero Triathlon on the 19th of August in London. With Kevin completing a ‘Tough Mudder’ experience and me just being dad, we are going to to take part in a 20k cycle, 5k run and 750metre swim. We are going to give Rhys an experience he has never had and will certainly remember. Hopefully inspiring hope and encourage more people to take part. We want to raise money for Cerebra who have supported Rhys with this opportunity and raise awareness for help and support for more SEN kids like Rhys.”

Rhys and Anthony will be using a boat designed by the Cerebra Innovation Centre. They tested it out ahead of race day in the swimming pool at the University of Wales Trinity Saint David Carmarthen campus.

Rhys and Anthony will be taking part in the Superhero Triathlon on 19th August. You can support Rhys and Anthony through their Just Giving page.

Anthony put together this lovely video of him and Rhys:

Richard Mylan presents BBC Radio 4 Appeal

We are delighted to have been given the wonderful opportunity to take part in the BBC Radio 4 Appeal.

Actor Richard Mylan will be presenting the Appeal for us which will be broadcast on Sunday 27th August at 7.55am and 9.26pm and again on Thursday 31st August at 3.27pm.

Bright Ideas for Brilliant Kids

Playing with friends, days out with your family, exploring the world around you. It’s all a normal part of growing up. But for children with brain conditions these things which seem so simple and natural can be difficult, even impossible. Sometimes children need specialist equipment to help them join in with life.

At Cerebra we believe that any challenge can be overcome. We provide specialist equipment to make life easier and more enjoyable for children with brain conditions, giving them the same opportunities other children have to live an ordinary life. Just take a look at some of the great work that our Innovation Centre does. 

Independence for Charlie

Charlie on his trike

Charlie on his trike

Charlie, whose story you can hear in the Appeal, is a great example of how we help children discover life and enjoy themselves. Charlie’s trike gives him the chance to be independent and have fun with his family and friends. He’s at the heart of the action and his days are filled with adventure. Since receiving his new trike Charlie hasn’t looked back!

 

 

 

 

 

 

Richard Mylan

Richard Mylan about to record the BBC Radio 4 Appeal at Broadcasting House

Richard Mylan at BBC Broadcasting House

Richard has appeared in many popular series and is best known for playing deputy head teacher Simon Lowsley in the BBC1 series Waterloo Road. Richard and his son Jaco were also the stars of an intimate documentary which aired on BBC One Wales – Richard and Jaco: Life With Autism. When Jaco was diagnosed as autistic, Richard was thrown into personal turmoil. He had to re-think his hopes and dreams for his son when he was just four years old. Now Jaco is 11, Richard’s biggest concern is what the future holds for him.

You can listen to why Richard is supporting us by clicking the link below.

 

How to listen to our Radio 4 Appeal and donate

You can listen live to our Appeal on Sunday 27th August at 7.55pm and 9.26pm and Thursday 31st August at 3.27 by tuning into Radio 4 on Digital radio, FM Radio (FM 92 – 95 FM, 103-105 FM) or on channel 704 on Freeview.

You will also be able to listen to it through the Radio 4 website from 27th August and we’ll post a link here when it’s available.

You can donate by phone, post, or on-line from 27th August and we’ll post all the details here.

If you would like to donate to us before then, you can do so on-line here or by texting CERE17 and the amount you would like to give to 70070.

Also, follow our updates on social media by following the hashtag #R4Appeal.

Thank you for your support. Together we can help families of children with brain injuries discover a better life together.

 

Watch Charlie enjoying his trike:

 

Christine Braves Wing Walk

We would like to say a massive well done and thank you to Christine Bunting who completed a wing walk to raise money for us on 4th August.

Christine is a member of our London Minds group and is no stranger to taking part in high adrenaline activities, having already completed a skydive back in 2015.

For this exciting new challenge, Christine took to the air on a 1940s Boeing Stearman biplane with the Breitling AeroSuperBatics Wing Walking team at Rendcomb Aerodrome in Gloucestershire.

Despite the rapidly growing list of activities she has ticked off her bucket list that have involved her to take to the skies, Christine actually has a fear of heights!

Christine said: “I wanted to do one last big fundraiser for Cerebra before I hit the ‘big 60’ which is rapidly approaching!

“I spent last winter wondering what I could do to top my sky dive because I wanted to do something that people would feel was really worthwhile to pay me to do.

“An idea began to brew and in a moment of, what I can only describe as complete and utter madness, I decided to sign up and perform a wing walk.

“Of course, now I’ve started telling people and raising money, I can’t quite back out and I have to go ahead with it!”

Christine has raised over £1,500 so far and you can visit her Virgin Money Giving page to help her reach her target.

Thanks for being Head Aware with us!

We’d like to say a huge thank you to everyone who joined in with our Head Awareness Week this year.

You really blew us away with all your commitment to wearing silly hats, wigs and whatever you could get your hands (or heads!) on!

A big thanks to Bolt Burdon Kemp, Centric Pontypool, Enable Law, The Hospital Saturday Fund, Irwin Mitchell Leeds, Novum Law, PenCru, Tomcat, Ruffer, Talking Mats and Wolferstans. They all fully embraced Head Awareness Week and got their staff to pose in an impressive array of head gear. You can see a selection of our favourite pictures below.

Thank you to everyone who took part and remember, if you would like to donate, you can still do so by texting HEAD20 and the amount you would like to give to 70070.

Alex Completes 60 Mile Trek

Alex and Ezra at Mwnt Beach

Alex and Ezra at Mwnt Beach

We would like to say a huge well done to Alex Elsaesser who recently walked through the night to complete a 60 mile trek along the Ceredigion Coastal path.

Alex said: “In the end it took us 29 hours walking to finish the 60 miles. Walking on the cliffs through the night was mental.  The group that organised the Walk pulled out a month before so we had to do it on our own. Fortunately we had beautiful weather and light winds. The scenery was beautiful but I would never suggest anyone do this all in one go. I never want to see another gate!”

Alex has completed many challenges for Cerebra previously including taking part in the London 10K for several years. He wanted to finish his run of fundraising with a bang and we think he has succeeded!

The 71 year old was joined on the walk by Jess Elsaesser and Ezra Mathias.

The group have so far raised an incredible £2,450 for Cerebra – far surpassing their initial £750 target. You can still support them through their Just Giving page.

Anne and Brian Make Fantastic Donation

Mrs Pearce hands her cheque over to Laura MacDonald

Mrs Pearce hands her cheque over to Laura MacDonald

The story of one little boy inspired Anne Pearce and her husband Brian to donate an incredible £5,000 to Cerebra!

Anne first heard about Cerebra from one of our Ambassadors, Nicola Tilson. Nicola has received support from our Sleep Practitioner Laura MacDonald for her son Alfie.

Nicola said: “Alfie had been diagnosed with a complicated medical condition. At that point, he had retired into his own world and we weren’t really sure how to bring him back.

When Laura came, it was a turning point for us. Since then, Alfie’s gone from strength to strength. It’s been progress after progress.”

Nicola has held several fundraising events for us, including several at Nationwide building society, where she works and that’s where Anne met Nicola and was touched by her family’s story.

Anne said: “I’ve been a customer for 20-odd years. I got to know Nicola and the fundraising they’ve done here. Nicola told me she wanted to fundraise for Cerebra for what they’ve done for her little boy.” When Nicola told Anne about her latest fundraising event, and she just simply had to be involved.

Nicola said: “Mrs Pearce, being Mrs Pearce, wanted to help. She came in to the bank a few days later with a cheque and we were absolutely blown away”.

Anne and Brian are both battling cancer themselves but still feel compelled to help in any way they can. As well as helping with donations, Anne has also knitted outfits which were used to clothe premature babies at St James’s Hospital in Leeds.

Thank you Anne and Brian!

Samuel and Angel Bake Some Sweet Treats to Raise Funds

Samuel, Angel and Jacky

Samuel, Angel and Jacky

On Saturday 1st July 2017, Samuel Turner and his friend Angel raised £50 for Cerebra at a fete at Treetops, a specialist school in Essex.

They made some delicious cakes to sell at the fete and even made a very special Cerebra cake which was of course Samuel’s favourite!

Cerebra Cake

Cerebra Cake

Samuel said: “In my heartfelt experience, it’s never a matter about what it means to anyone, this lovely Cerebra cake is not just to raise money for the charity, it’s about hope and capability to show that there are children around the UK that are suffering problems inside and I believe that we should help to find a solution because people might be unaware of the child’s problem.

I’m proud to make this special cake. I think some student and pupils would love the cake I made and me, my mum and my friend Angel have felt the love for being at Treetops School to help Cerebra. This does makes me, my family and my friend Angel feel so special for our great efforts since I started helping the charity at the start of 2017.”

For Samuel’s friend Angel Jolly, it was a life changing activity unlike anything she has ever experienced.

Fete table

Fete table

Angel said: “We all were excited to be at Treetops fate. Once we got there, we all worked hard as a team to decorate our table for the fete. At first, I thought we’re going to sell a lot of cakes. Sam and I wore the Cerebra shirt and Jacky, which is Samuel’s mum was wearing a Welsh t-shirt. Originally, the Cranberries cake went to the Bake-off competition but we didn’t win. In the end, we took part and we are all very happy.”

We’re very lucky to have fantastic fundraisers who are always willing to go the extra mile to raise funds and awareness for Cerebra.

If you would like to find out how you can support Cerebra by holding your own event like this, please contact our fundraising team on 01267 244222.

 

SunsEnergy

Steve Jones from SunsEnergy (right) with Mark McArdle, our Head of Contact Centre.

We are delighted to welcome SunsEnergy Ltd as Ambassadors for us.

Steve Jones, from the company, explained that they are delighted to supporting the charity: “we can see that Cerebra are providing real help to these children and are providing a solid level of funding”.

SunsEnergy Ltd are a leading installer of solar heating products and have worked on many prestigious projects such as the Thames Barrier in London. You can find out more about SunsEnergy here.

We look forward to a long and successful partnership with the company.

Join our team and be a Triathlon Superhero!

The Superhero Tri is the UK’s one and only disability sports series for the everyday Superhero and their family and friends.

The event will take place in Dorney Lake, Windsor on 19th August and promises to be a fun filled day with the chance to meet and take part alongside Paralympian and celebrity team captains.

We’re thrilled to be a charity partner for the event and we’re looking for people to join us on Team Cerebra. There are lots of different ways to take part, the only requirement is that one person on your team (or you if you choose to fly solo!) must have a disability:

  • Team up – unite with disabled and non-disabled friends and family to share the fun
  • Grab a sidekick – tow a teamate in the water and push or pull them around the course
  • Fly solo – for those who want to take on all the triathlon stages by themselves.

There are also three different distances that you can choose from:

  • Sprint – 150m swim, 3k cycle, 1k run
  • Half – 400m swim, 10k cycle, 2.5k run
  • Full – 750m swim, 20k cycle, 5k run

Father and daughter team, Rob and Poppy, have already signed up and have been chosen to take part in a special celebrity race. They’ll be partnered with Olympian Chris Jones and will be competing against the likes of Hannah Cockcroft and comedian and talk show host Adam Hills.

You can find out lots more about the event on the Superhero Series website, but if you’d like a chat about the different options and how we can help you to take part please just get in touch with ceciliab@cerebra.org.uk.

We’ve got people on hand to help out with the running, cycling or swimming legs and may also be able to supply some equipment – including a specially designed boat.

We’d love you to join us and show off your superpower. So please get in touch – it’s going to be awesome!

 

 

Poppy to Take on Second Triathlon Challenge

Rob and Poppy

Rob and Poppy

Last year, eleven year old Poppy Jones realised her dream of competing in the Cardiff Triathlon. This was particularly challenging for Poppy as she has chronic lung disease and quadriplegic Cerebral Palsy. This means she can’t sit, stand, roll or support herself and life is a daily challenge for her, but having a life-limiting condition doesn’t stop her having fun.

Poppy’s Dad Rob helped make her dream come true by pushing/pulling her around the course using custom made equipment specially designed by our Innovation Centre (CIC).

The father and daughter team will be once again rising to the challenge, taking part in the Swansea Triathlon on 28th May.

Rob’s motivation for doing this is simply to help his daughter: “taking part in this triathlon is so exciting for her and psychologically it will really benefit her. She gets so frustrated at the limits her condition puts on her and this will really focus her mind on what she can do. Poppy doesn’t think ‘I can’t’ but rather ‘with a little help I can’. I’ve got my work cut out though as Poppy doesn’t want to just take part – she wants to win!”

The team at team at the Innovation Centre, who designed the equipment that allowed Poppy to take part in the Triathlon last year,  took this opportunity to re-design some of the equipment to allow Poppy to compete on an even larger scale.

“Last year, we designed a chair and boat in Poppy’s favourite colour – yellow,” says Dr Ross Head from the CIC.

“For this year’s challenge, we’ve modified both products to make them more efficient; to make them faster – and to change the look to match Poppy’s new favourite colour, orange!

“Poppy’s also grown a lot since last year’s triathlon and the boat we built last year was too small. So I redesigned the boat to be bigger, however this meant it would be heavier, so I started from scratch using everything I had learnt about hydrodynamics to ensure the boat would be fast, efficient and create the minimum resistance so that Rob could swim the course. This year’s boat uses a V-shaped tri- hull. This allows speed through the water but is given stability by the two smaller outrigger hulls.

“Poppy’s Triathlon Chair has also been upgraded to make it faster and more comfortable. The guys at V-Trak very kindly donated some high quality wheels to help them roll to the finish line. It has upgraded bespoke components which will ensure efficiency, a speedy transition from cycling to running and ensure Poppy’s safety.“

The CIC team recently tested the boat out on the water (see below for photos).

You can sponsor Rob and Poppy through their Just Giving page.