News – July 2015

A stack of newspapersNHS Choice Framework 2015-16
Sets out the health service choices currently available to patients in England (including GP, specialist, hospital, maternity, personal health budgets, going to other countries.  Dept. of Health).

Tax-free childcare: 10 things parents should know
(Updated version July 2015.  HM Treasury and others.) From Autumn 2015 (phased dates), the narrower UK system of employer-supported childcare will only be available for those who are already part of such a scheme (the “Childcare Voucher Scheme”).  More details here and at Turn2Us. The new scheme also extends to self-employed parents. It requires prior self-assessment tax registration with HMRC.

DLA during hospital stays
A Supreme Court ruling has held that cessation of DLA payments, when a boy was in hospital for more than 84 days, was against his human rights. There is a follow-up petition at http://campaign.cafamily.org.uk/ea-action/action?ea.client.id=1918&ea.campaign.id=36939&ea.tracking.id=CaFWeb which could help to change this situation for others as well (Contact a Family).

Guidance on the Integrated Review
The Integrated Review at Age Two, due to start by September 2015 in England, is designed to bring together the current Early Years Foundation Stage (EYFS) Progress Check at age two with the Healthy Child Programme (HCP) 2 – 2 ½ year health and development review, into an integrated process between early education and health practitioners.  One of the aims is to identify and support any developmental needs early. (Foundation Years).

Supported Internships
Advice on supported internships for young people with learning difficulties (England), (Dept for Education).

Legislation

2015 No. 268, The Provision of Early Learning and Childcare (Specified Children) (Scotland) Amendment Order 2015
From 1 August 2015, amendments to the Provision of Early Learning and Childcare (Specified Children) (Scotland) Order 2014.  The effect of these is to entitle a wider range of pre-school children to an amount of early learning and childcare from the education authority.

2015 No. 269, The Education (School Lunches) (Scotland) Regulations 2015
From 1 August 2015, Broadens the categories of school / pre-school pupil entitled to free lunches.

2015 No. 1367 (W. 135), The Care and Support (Population Assessments) (Wales) Regulations 2015
From 6 April 2016, the regulations require local population assessment reports to be sent to Welsh Ministers, with details set out in section 14(1) of the Social Services and Wellbeing (Wales) Act 2014. These include numbers of people needing care and support, such as parents of children with disabilities.

2015 No. 1411, The Social Fund (Budgeting Loans) (Applications and Miscellaneous Provisions) Regulations 2015
From 22 July 2015, adjustments to the method of applying for budgeting loans in the UK under the Social Security Contributions and Benefits Act 1992.

2015 No. 1438 (C. 81), The Health and Social Care (Safety and Quality) Act 2015 (Commencement No. 1 and Transitory Provision) Regulations 2015
Already in force since 25 June, these regulations aim to strengthen and increase the consistency and sharing of information about individuals, and to reduce avoidable harm (in England).  Other regulations connected with the Act are expected to follow.

2015 No. 1418 (W. 142), The Cancellation of Student Loans for Living Costs Liability (Wales) Regulations 2015
From 1 August 2015, these regulations govern the student loan liability of students who receive loans for living costs from the Welsh Ministers in respect of the academic year 2015/2016.

Resources – July 2015

ResourcesOur monthly roundup of helpful resources.

Ollibean
Online discussion group for parents, carers and people with disabilities.

Skybadger
Lists sources of information, help and activities for disabled children and their families.

Let’s stop bullying for all
A Youtube video featuring advice given by young people with disabilities, (Anti-bullying Alliance).

The Early Start Denver Model
A description of an approach to infants showing signs of autism, (Autism Speaks).

Positive Behaviour Support
An introduction to the Positive Behaviour Support (PBS) method, (British Institute of Learning Disabilities, BILD).

New factsheets for parents in England
Help in the early years if your child has additional needs; and Personal budgets, (Contact a Family).

Disabled Children and the Equality Act 2010, by Philippa Stobbs
What Early Years providers need to know and do, including responsibilities to disabled children under the Children and Families Act 2014. (Council for Disabled Children).

Cerebra Week 2015

Cara Readle with the Cerebra Fundraising Team

Cerebra Fundraising Team

Cerebra will be holding its annual awareness week in Carmarthen town centre from 27th July to 1st August.

This year a team from the charity will be in Merlin’s Walk from 10am to 4pm each day and there’ll be lots of fun activities, games and competitions to keep the children, and the whole family, entertained. There will also be the chance to meet Sir E Bear, the charity’s giant teddy bear mascot!

Anyone who stops at the Cerebra stand and has a go at one of the games will have the chance to be entered into a free prize draw to win family tickets to local attractions such as Folly Farm, the Gwili Railway, Dinosaur Park and Manor House Wildlife Park.

Allyson Silverthorne, Community Fundraiser at Cerebra, said “Our Cerebra week in Carmarthen is one of the highlights of our year – it’s always a lot of fun and it’s so lovely to have the chance to chat to people about the charity’s work. If you’re in the area please stop and say hello”.

The charity is very grateful to the management and shops at Merlin’s Walk and to the local tourist attractions for their support.

Alissa completes her 10k challenge

Proudly showing her off her medal

Proudly showing her off her medal

We are delighted to let you know that on 12th July Alissa Elsaesser successfully ran the British London 10K in aid of Cerebra.

Alissa was an absolute star on the day and loved the cheers and support from the crowd. She even achieved her ambition of crossing the finishing line ahead of her dad, Alex.

Alissa running in the London 10k

Alissa in action

Alissa was born with Down’s Syndrome but that has never held her back and she is always eager to help those in need. This is one of the reasons that she has decided to take on this challenge; to help children with neurological conditions across the country.

Her fundraising total is steadily climbing and she has now managed to raise well over £3,000! If you would like to donate you can do so by calling 01267 244221 to make a donation over the phone, or through her Just Giving page.

Alissa would like to thank everyone for their support and donations and for their kind messages of encouragement.

Wish Alissa well for her 10K challenge!

On 12th July Alissa Elsaesser will be running the British London 10K in aid of Cerebra.

Alissa was born with Down’s Syndrome but that has never held her back and she is always eager to help those in need. This is one of the reasons that she has decided to take on this challenge; to help children with neurological conditions across the country.

She is currently enjoying local celebrity status having been interviewed for Radio Carmarthenshire and the Carmarthen Journal all in one week! She remains humble and the kind words of support that she has received from people across the country are encouraging her to get out there and do the best she can on race day.

Please feel free to leave a comment of encouragement at the bottom of this page and together let’s help Alissa beat her 10K challenge! If you would like to donate, you can do so by calling 01267 244221 to make a donation over the phone, or through her Just Giving page.